I didn’t realize this was such a negative question to ask. I suppose it could be used as a put down, if I didn’t know better, which I didn’t.
What I’m talking about is Orofacial Myofunctional disorder from being tongue tied.
What is Orofacial Myofunctional therapy all about?
If you are a mouth breather, or you suffer from TMJ, poor sleep habits, drooling, teeth grinding, poor chewing (and therefore, digestion) or have an upper airway obstruction that causes a multitude of behavior problems from poor sleep – than YOU too might need some therapy. (I already KNEW I did!)
Getting the body to FUNCTION correctly, so you can be well, is very important to us.
Understanding your body, the way God made us each so differently – and learning how to “work with what you have” is key.
I think back to the stress of having my son.
The first grandchild, born right before Christmas…
Born at 9 lbs 3oz, he was a failure to thrive for almost 8 weeks. Labeled a “slow” nurser, there was more going on than that. Determined to nurse, and reassured by every 3 day doctor visits, and personalized nursing visits – the professional told me, all was ok. But wasn’t ok… and I can almost blink and feel the emotions I felt back then.
Helpless. Unsupported by family… It was a pretty lonely road for my husband and I with our first child, but a great learning opportunity that God eventually used to grow us towards Him. The one person who really supported us, happened to be my doctor’s wife, and the Godmother of our children. She understood a slow-gainer, and the frustration and stress of your first baby dashing those hopes of being a ‘by the book’ baby. She brought me lots of info, was my shoulder to cry on and let me know he would “ok”…
I’m sure I had post pardum depression. I hardly slept. He cried ALL THE TIME.
I think now… he wasn’t JUST hungry… he wasn’t able to swallow from the breast properly. He eventually learned how to adapt to a bottle, and I pumped my milk for him until he was about a year old. But, not before I lost much of my breast tissue and cried for nights on end.
What seems to happen now (commonly) with just a clip of the tongue while the baby is still in the first few weeks of life, was missed… with him – and all of our children. Some how. It just shows up differently in each one.
That oldest son is getting his 3rd set of braces off soon… because of his tongue thrusting. After his second set, and going to only “night wear” of his retainer – they shifted back within 6 weeks. The orthodontist suggested “tongue training” at the time… but I had no idea what that meant, or how that would even be possible.
He has battled drooling from only a few months of age, and lived in a bib. They even did a stomach sonogram to insure that food wasn’t causing his spit up sessions after a doctor was concerned his value by his esophagus wasn’t sealed. I tease my son about it now, when he “forgets to swallow” but only because I didn’t understand it – until now. I don’t do that any more.
He’s never been able to swallow pills… and again, I think “you just do it.” What could possibly be the problem?
Unless you don’t really know how to swallow “back” – but only thrust forward.
Again the guilt seeps in. Where was the medical community to tell me and guide me through this?
No wonder he had motion sickness, and awoke from naps crabby…. every. day.
No wonder he’s a night owl, like me. It’s hard to fall asleep, to stay asleep… to feel well rested.
So, we’re working on our consult for our family. I’m not sure of the cost of this type of thing, but I’m guessing (again) that it’s out of pocket. The therapy after it’s cut is important… in retraining just how all of those neck and head muscles work together.
It’s crazy that I would be so excited about something like this… but I am. I’ve started focusing on sleeping on my back, and the deep breathing through my nose with my mouth closed. I want my kids to be able to rest well, and hopefully function more as God intended, for His glory. Healthy for Him!
“The Spirit of God has made me, and the breath of the Almighty gives me life.”
It’s right around the corner… just one more day! Spring makes me think of CLEANING and purging! I’ve been in an extra great mood to work on this, after the week I had the last week.
Thankfully I was super busy, and wasn’t able to focus on what was going on around me and to me, otherwise I might have jumped off of a cliff. Ok, not really – but I’m thankful for my friends who lifted me up in prayer. I really needed it.
We took the kids to visit their doctor last week, and I got a vitamin IV boost. I was already low on sleep, and per my doctor’s instructions, had started a vitamin C cleanse (with my SIBO elimination diet), and I also began taking my methylated vitamins for my MTHFR issues. (more on that in a minute)
Well, what happened was a cleanse alright. I thought I was chelating again, as the following day I spent a lot of time saying, “Oh Lord… please help me… don’t let me die.”
This is when I think MOST people go to the ER.
However, since I’ve dealt with knifing pain in my stomach and bowels for years… sadly, it’s almost normal for me.
Thankfully, it’s LESS normal – as IBS isn’t an issue anymore for weeks on end…
No, this was definitely a detoxify issue.
So, what is up with all of that? Well, it’s because methylated vitamins are what I need… my liver can process those. So in the meantime, things get a lot worse – before they get better.
My finger nails broke all off, and I just felt like someone was repeatedly squeezing my stomach and then kicking me in the gut for about 4 days straight. On day 5, I started to feel much better. More energy, lots less bloating and constipation… I have great hope that it’s making big differences, and I am SO grateful.
Unfortunately in the middle of my chaos my daughter, and then 2 sons started breaking out from a gluten cross contamination last week. At first, I was certain it was my daughter’s new orthodontic “bands” that she started wearing – as cornstarch is used to keep them from sticking to one another. However, then the boys started breaking out a few days later… I knew that wasn’t the only thing we were dealing with.
I knew it had to be something knew – either a formula of a vitamin had changed or perhaps an ingredient I was using had changed…. I knew I wasn’t doing anything specifically different.
My daughter had a formal date with her father and was broken out from her shoulders to her hands, in the usual DH spots for her. The boys were both broken out on elbows and hands. I think it’s been a YEAR since we have had a break out… I should count my blessings God has allowed us to keep such a good handle on things.
That said, I’m SO grateful that we KNOW when we’ve been cross contaminated… so we can be aware and do something about it. About 3 days ago we took away their daily vitamins to see if could be one of those. I must always remember that even the item that are labeled “gluten-free” can still have up to 20 ppm in them – and perhaps some “new batch” was higher than most… Regardless, my kids are SUPER sensitive, and I am bound to get to the bottom of this! Gluten dermatitis issues are always difficult because they take 1-2 days to show up after ingesting, and then another 2-3 weeks to go away, even after you remove the cross contamination. Trying to figure out if they’re worse or better is always fun in the process, especially once they start the itching and scratching.
Another fun tidbit I learned while discussing MTHFR with the kid’s doctor, was the whole midline issues, and things like the “tongue-tied” or “tongue thrusting” issues.
Why did this mean so much to me? Because our oldest just got braces put on for the 3rd time this year. He had them off for 6 months before we realized, his whole smile was changing again. The orthodonist had him swallow and declared it was his swallowing and strong “tongue thrust” that had moved his teeth out of position, despite a nightly retainer. As you might imagine I was hoping there was something they could do for this… and the orthodonist recommended “tongue training”. I had no clue what that meant. (here is an idea, if you want to know) Thankfully the kid’s doctor had lots of information that would be helpful and explained a lot on how to help my kids who are struggling with various issues. All of the kids she’s seen so far are tongue tied… some are severely tongue-tied – like my oldest.
Those kids with MTHFR, and midline issues often have the following issues (I think my oldest had ever one): Troubles nursing (many times they will get their tongue “clipped” to untie it, this helps tremendously), or mom will have sore nipples, slow nurser/failure to thrive, motion sickness/troubles sleeping/night waking/mouth breather. Mouth breathing while sleeping makes it difficult for you to get into that “deepest sleep” mode, and can make you imbalanced with melatonin, and sleep, you also take in less oxygen, so that’s trouble for your immune system. Those people are often more acidic, so cancer is more likely as well. When our oldest was little, he never woke up from a nap happy, and ironically, our youngest son is the same way. They are just always feeling not well rested, and have troubles relaxing to go to sleep because of this disrupted cycle. Sound familiar? Hmmm. I’m the exact same way.
Isn’t it interesting how things like this fit together? God is such a great designer to make our “system” work together so perfectly.
I always wondered why some of my kids were horrible at swallowing pills… if only I would have had their tongues clipped early on, and knew to put them on methylated vitamins for the sake of their liver!!
I am happy to announce how much progress my kids with ASD are doing. My oldest daughter has been saying, “Hey mom… look at this, and check this out” a lot more. She never used to do that. She’s even put on earrings to match an outfit ALL BY HERSELF. Again, details are not generally her thing. Most of the time she’s been much calmer, and WAY less irrational fits… with a higher level of communication. Since she was my most severe – it’s been a gift to see her thriving, and knowing these changes are helping her.
Thanks be to God. Can I just say how good it feels to be making progress, and seeing the fruit of what God has done in my own body, and that of our family? I’m feeling stronger each day.
How about you? Working on spring cleaning? Do you have any great printable check lists? Fill me in!
“Have I not commanded you?
Be strong and courageous.
Do not be frightened, and do not be dismayed,
for the Lord your God is with you wherever you go.”