Category Archives: Our Struggles

The Great Detector, Progress and Cancer Truths

This is a thermography camera.  Not scary at all.  Nothing touches you - nothing hurts you, or causes cancer, like mammography.

This is a thermography camera. Not scary at all. Nothing touches you – nothing hurts you, or causes cancer, like mammography.

I’ve made great strides since we last met.  God has been working on my heart, and mind and helping to show me new ways He created to heal myself.

First, myofunctional therapy.  It works.

I’ve learned to keep my mouth closed at night – through the various exercises I’m doing with my children.  At first, I thought it was a fluke… but a week later, I knew it was for real.  I was a believer.  My son has his appointment next month to get his tongue and lip untied as well, and after the first of the year – we’ll be looking at being expanded and braces… together.  I think our orthodontist finally gets that this isn’t about looks – as much as it is oxygenating our bodies, and restoring our health – for now and the future.

Check out how much MORE air is moved through your nasal cavity at night, while your mouth is closed.  God has a purpose in warming and filtering that air also.

Check out how much MORE air is moved through your nasal cavity at night, while your mouth is closed. God has a purpose in warming and filtering that air also.

Secondly, I talked to my ND about LND (Low dose Naltrexone – compounded), and Alpha Lipoic Acid.  They work together to help keep the stress I can’t control from taking over my health.  This couldn’t have happened at a better time.  I had been considering it for a long while – as the results with helping those with MS were pretty significant.  Within the first week, I noticed the back spasms I’ve had for years – were gone.  I’m about 3 weeks into it now – and they are still gone.  Praise be to God.  I’m on a low dose now – and I’m thankful that is working.  It’s a good sign – because as we all know, we simply can’t control all of the junk going on around us, and that really tanks my adrenals and my immune system.

Thirdly, after watching most of the Truth About Cancer series, I started taking Fulvic acid.  There is plenty of info out there, but here is a small bit of the benefits.  The doctor who shared about it said in all of this 8000 patients, he had never had a negative reaction to it.  That gave me a bit of hope – as I seem to react to everything.  So far, so good!  The doctor said he didn’t want it sound like a ‘Magic Bullet” or too good to be true – but I’ll admit – I’ve noticed a boost in energy, and my kids have seemed more level on it.  Not only does it gives your body essential vitamins, minerals and amino acids, it binds to toxins, and works as a chelator to metals and other things you don’t want inside of you.  The other cool thing is, it could have only been created in nature by something “like the flood”. 🙂 God knew we were going to mess things up, and He allows us a way to restore!  Praise be to Him.

Lastly, I had my thermography appointment in the midst of “breast cancer” awareness month.  I’ve noticed some changes in my left breast, and because I’ve had fibroids in the past – I just thought it would be smart to check up on things, for my future health.

The test was relatively simple, with the most difficult part being sticking my hands in ice cold water as a “challenge” to see if the spots in question still show up as being “fed”.  I was to get my results within a few weeks, and if everything was normal, I wouldn’t need to speak to the doctor.  I set my “phone appointment” – with the intent to cancel if all was well.

The weeks came and went… and I didn’t hear from my doctor.

I knew something had to have been in question – and deep down, I think I knew something was there all along.

Last week my ND confirmed my thoughts…  My fibroid showed up on the right side, and on the left side, near my other fibroid, there is an area in question, being fed vascularly.

She requested I get a sonogram, and I can’t remember much else she said after that…

I had some questions… we talked about my past issues on that side…

I always struggled with mastitis due to dense breast tissue, scar tissue and being lumpy.  Before my test, I thought maybe I was dealing with non-lactating mastitis…  that maybe some underlying infection in my breast was causing issues.

As I talked through things with my ND I became acutely aware of how I got to where I was.

My lack of regular cycle stemmed from not absorbing the right nutrients in my early teens and loading my liver with estrogen from the fake hormone therapy (BCP) at high levels.

The BCP never solved things with my irregular cycles and contributed  to the massive, fast growing tumors I had from ages 15 to when I went off at age 23 when married.
Having those 3 breast surgeries, to remove fibroids, led to scar tissue and combined with the lumps and poor diet, led to chronic mastitis.
That chronic inflammation and antibiotic cycle continued to break down my gut, thyroid and immune system.

Thyroid dysfunction is essential for cancer to grow.

So my chiropractor happened to ask me “when” I would get off of the Estro-DIM I was on.  I didn’t have an answer…  I assumed I would be on it … indefinitely.  He said, “but when your liver is functioning well, you should be able to get that out of your body.  You should be able to go off of it”

The wheels were turning, but I still wasn’t getting it.

So basically this estrogen, that continues to cycle and ramp up in my body is causing cancer to be fed in my left breast, and as my ND said, “We need to get that estrogen – OUT!”

So…  I set my appointment for a sonogram this week to see exactly what we’re looking at… and we’ll go from there.

My chiropractor suggested another saliva hormone (cortisol test) to see where my estrogen levels are.  If they’re still sky-high – perhaps an estrogen inhibitor for a time while I’m detoxing – could help me get over the hump.  Clearly my body hasn’t done it on its own yet.  I appreciate health-care providers who help weigh your options, and really do “get” natural healing.

I am not scared, I am thankful for the gift of this information, and the opportunity to help my body be well.

I know I’m in better shape than most.  Tackling a new diet doesn’t need to happen… but increased detoxing does.  Staying the course with de-stressing, exercise and sleep.  (Ok, so I still need more sleep!)

I’ve increased my juice in-take, been working on resolving negative emotions from relationships that destroy, and purposefully avoiding those who are toxic to my health. (Yes that’s number one when disease appears – negative emotions and stress destroy your immune system).

I know we all deal with things differently.  What works for some, doesn’t work for others…  I’ve learned over the course of the past three years, it’s easier for me to just not talk about things openly until I have a plan.    “Checking in” with people stresses me out.  I knew writing this all out would help me.  My mom and husband and kids know – and kids said this.  “I’m not a afraid mom, because I know that God will show you what to do.” 

They are right.

Not only that?  But a thermography shows more than a mammogram would have … maybe for years.  So I must assume I’m ahead of where I might be otherwise.

Until next time!

If you missed the Auto Immune Summit, or the Truth About Cancer series – please take the time to check them out.  SO much great information out there for us to help ourselves.  God is good.

And He said to him,

“Rise and go your way; your faith has made you well.”

(Luke 17:19)

Overloaded Sinuses

photo_BEETJUICE

I’ve been a terrible blogger lately. It’s really not you, it’s me.  As much as I cut out of my life to prepare for this crazy busy soccer season and preparation to build a new home, blogging just had to take a back seat.

I wanted to update you all on my first round of Fluconazole, how my son’s sinus surgery went, as well as how our Myofunctional Therapy is going along!  It’s been a busy end of summer at our house!

First off, the Fluconazole did help.  Not enough for me to eat raw veggies… but enough to notice a change in distention after eating.  MUCH improved.  We’re talking about round two starting soon, but I definitely want to try it again.  I’ve been more consistent daily with my juices to start my day, and keeping my meat portions in check.  More recently I’ve gone back to keeping all raw fiber out of gut, so only cooked veggies, avocado (1 a day total) and well cooked meats – mainly salmon, chicken, and turkey – with some red meat (Grass fed and finished beef).  I’ve also been studying some on parasites, and cleanses with that.  I ordered SA Wilson’s coffee for this.

My son’s surgery went fabulous, as did this healing period.  The only issues we had were with recovery in the surgical center.  The medical reports (yes, we got them!)  said that the surgery went well and he woke up and went to recovery.   We ended up waiting almost an hour following surgery, to get to see him.  He had to be put on oxygen for about 4 hours because the nurses had drugged him with Demerol, an old drug they used to use in the 70s.  Not cool.  Especially considering we talked in length with the anesthesiologist about his adrenal issues, inability to methylate narcotics, etc.  She totally understood.  She actually came in following surgery and said… “mom was riiiiight.”  So we’re fairly certain it wasn’t her that gave the orders for that.  Meanwhile, we he also had an allergic reaction to one of the other medicines they gave him…  Still we have yet to get the paperwork on this situation to figure out what we need to be aware of.  THAT has been frustrating and is just one of my many beefs with the whole western medicine bullying that can occur.  Clearly you have a right to the records and information – you are the patient.  Especially on an allergic reaction, you need those records to be informed for your health future.

Our family Skype classes start Wednesday with our therapist.  I’m excited.  We got our kits with all of the toys for class, we took all of the “before” essential pictures, and we got our binkis to start doing our muscle therapy during “zone out time” at home.  Our orthodontist still doesn’t seem quite sure what to think… but as the therapist said, some people you just have to “show” for them to get it.  (One of the suggested books is: Close Your Mouth)

I’ve managed to have a sinus attack with our weed pollen counts through the roof in Kansas, followed by some type of virus that went through our family.  Pertussis has been pretty thick throughout the county, so it could very well be that…  you know us though, definitely NOT afraid of the promoted and highly exaggerated “big, bad wolf.”  The kids keep asking when they are going to start coughing.  We’re wondering if with supplements and our diets – if this just won’t be an issue.  The mucous is super thick – but with high levels of Vitamin C, increased probiotics, vitamin D and fish oil – we seem to be faring well.

Some info on treating whooping cough naturally for a 30 year immunity, vs a 3 year (maybe) with the vaccine.

Anyway, for us, so far, so good.

That’s about it for me.  Our trip did do me in, as traveling and all of that jazz always does.  I’ve struggled to get back on track with juicing and having issues with “C” that leave me throwing up because I’m so full.  I really hate that part…

This time when I left, I found myself missing “home” and family even more.  There is something about being with people who just get you, who are a support system,  they encourage and love you.  When I said good-bye to my mother she held on long and cried deep.  I wondered in my heart what it must feel like to know you’d never just “hang out” with your daughter again… how afternoons together, grabbing a movie or a meal wouldn’t be possible because they simply lived too far away.

Not just for a season, but forever.

My acupuncture read out said that I was struggling with stress, and “a broken heart.”  Couldn’t have been more spot on.

Thanks be to God for the burdens and heartache He carries when we can’t.

 “The Lord is close to the brokehearted and saves those who are crushed in spirit.”
Psalm 34:18

 

How Do You Eat an Elephant?

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If there is one thing that I’ve learned about my health over they years, it’s that restoring your health isn’t an over night process.  There is no magic pill that will fix it, no “one-size-fits-all” answer…

That said, there are common threads in healing, and it starts at getting to the source of a problem.  While reading “The Paleo Approach” book, she talks about how getting your auto immune symptoms in remission, or under control, really depends on your compliance to your route.

I’ve read lots of things that talk about healing MS or other autoimmune diseases, only to NOT talk about an auto immune protocol diet.

Going gluten isn’t mentioned… or being grain-free, or dairy-free… or refined sugar-free… and those are the top 3 things that have to be completely eliminated.  Slowly but surely… we’ll get there.  (But how many people suffer in the process?)

I recently read a commentary on the Paleo Mom Community Facebook page, where someone said the Mayo Clinic actually advised this person to go “Paleo” for autoimmune disease.  “They are big believers of the Paleo diet and advised me to change my lifestyle.”

That surprised me.

I mean, I know it’s true – but you know things are changing if Mayo is starting to pay attention.

While I don’t necessarily like the word “Paleo” – It works – it’s the easiest way to explain to people what it’s like to eat REAL FOOD and to focus on a nutrient dense diet and it’s recognizable by many people…

I think when Paleo doesn’t “work” – there are more food sensitivity issues that need to be addressed.

Sometimes there are also other things that need to be looked at as well… that aren’t diet related.  Sometimes they’re toxins, sometimes they’re structural, and it’s crucial – and you have no clue.

I mentioned a few months ago about my oldest son “tongue thrusting” and being a mouth breather, and the issues that has caused over the years.  I’m sure maybe you thought, how much does that really matter?  (Read this and find out!)  Honestly, I had no clue either.  Our entire family finally met with our Orofacial Therapist to discuss what we need to look at for the kids and myself, and we also had an appointment for our oldest son, who takes first priority with this whole issue.

After much discussion, and evaluation of 5 of the kids, it was determined most have the same issues – deep tongue tie, many had lip and buckle ties, and some type of breathing restriction as well.

She shared about her own kids, and her and her husband’s struggles … and I heard a lot of the similar issues we’re battling.  I’ve read enough to know if you have a poor sleeper,  or a child with speech issues, a child with ADHD personality traits, a slow grower, a poor immune system…  on and on – it’s worth looking into.  THIS could be a missing link to helping to restore your child’s (or your own) health.  Read more about Orofacial Myological Disorders here.

My son has adapted well… I will admit that… but it’s also a huge burden lifted to hear someone who “gets it”… that this needs addressed, and why.  It also gives me great hope that we can DO something for him, so he and the others don’t end up in the position I’m in health-wise.

So we went from the Therapist, to the ENT, and weren’t there very long before we knew surgery was going to be D1’s best option.  He needs a Septoplasty surgery to fix his deviated septum, and they will be removing his adenoids as well.  Oh boy.

So… here’s the long-term goals for revising his tongue thrust and restoring his health:

1. We get him a hole to breathe out of to stop the airway obstruction: Septoplasty, and allow him to heal from surgery (About a month).
2. We do a laser procedure to release his tongue and lip tie, and start therapy which will include regular therapy with deep tissue massage to release a lot of the issues that are currently embedded into his cranium (Functional Cranial Release), neck and shoulders.
3. We look back into expanding his palette, and braces.

Now because this hits home for myself so much…  You know I’m excited to get started on myself as well… I hold all sorts of incredible stress in my neck, and see a chiropractor regularly for adjustments to help me with pinched nerves and my son is the same way.  I’ve always struggled with my posture…  I didn’t know why.  I get a little giddy for HIM just knowing how much better he will begin to feel when this is all said and done!

So how will we eat this elephant?
One. Bite. At. A. Time.

D1’s biggest delight is that his surgery will be in the next 30 days, so he will be able to place high school soccer at a new level this year.  I can only imagine how much faster he will run when he can BREATHE!  Praise be to God for this journey and His leading!

For more reading on this topic.  My Orofacial Therapist recommended the new book:
The Cause and Cure of Malocclusion, by John Mew.

“My son, if you accept my words
and store up my commands within you,
turning your ear to wisdom
and applying your heart to understanding—
indeed, if you call out for insight
and cry aloud for understanding,
and if you look for it as for silver
and search for it as for hidden treasure,

then you will understand the fear of the Lord
and find the knowledge of God.
For the Lord gives wisdom;
from his mouth come knowledge and understanding.
He holds success in store for the upright,
he is a shield to those whose walk is blameless…”

Proverbs 2:1-7

Just Breathe

D1_LIP_TIE

We might take for granted that we breathe.  It’s something we don’t think about often, until our passage ways, by which we take in oxygen, are blocked.  Either we’re stuffed up, or swollen up, or something toxic in the air prevents us from breathing…

How much thought have you given to breathing while you sleep?

Do you snore?

Are you a mouth breather?

Do you “smack” when you eat?

Messy eater?

Drooler?

Have trouble swallowing?

I remember my snoring and lack of ability to breathe being SO bad during pregnancy, my husband asked the doctor if I could “die” – because it sounded like I was gasping for air.  Yes – it was really horrible.

We had our first official “meeting” via Skype with our Oral-facial Therapist this week.  The woman who has insight into helping my 14-year-old be able to close his mouth, retrain his tongue, and avoid yet another round of braces.  Time is of the essence.

Something I didn’t realize until a few days ago, D1 has a lip tie, in addition to his tongue tie.  That’s partly why he can’t close his mouth.  His top lip is “tied” to the skin of his face inside his mouth, not allowing him to pull that lip OVER his teeth, and close his mouth.

His lips are always cracking and dry.  He is a horrible mouth breather.  It often leads to bad breath.

All of that seems pretty minor, comparatively to the quality of sleep he has been missing over the years.

Sleep is essential to your body healing.  Its’ when you repair and recover…. and grow.  There is growth hormone only created when you sleep.

So while getting your inflammation down, and eating a real food diet is helpful, as is increasing your zinc, and getting enough vitamin D…

If you’re not getting the proper oxygen throughout the day, and you’re not getting the oxygen flow at night.

Guess what?

Not cool.

So we discussed all of that… and next week we’re setting up an appointment with an ENT to take a look at D1, so we can address these issues with him first.  I’m fairly positive he isn’t the only one who will be addressed – but the palate expander on several of the other children HAS helped address things dramatically.  She said when you’re talking about even tiny millimeters of space “cleared” to allow oxygen flow, you’re talking huge differences.

While we talked, she shared part of her story.  Very similar on some levels to mine.  Metal toxicity, and healing her body inside out.  She encouraged me to look into expanders myself.  I told her my orthodontist seemed to shy away from that, at my age…  she disagreed, and said it was the best thing she has done, although they used removable devices, so you can eat – it has made HUGE impacts on her sleep and healing.

I can imagine…. just how much that is impairing my healing process.  I do sleep – but I never feel rested.  I just don’t.

She explain how braces used to be addressed, vs. how they are now…  The teeth on top were “aligned” and the bottom jaw was “tucked” under.  (If you can visualize my profile… Beeker from the muppets comes to mind!)  She went on further to say that once you set that bottom foundation – then you set the top teeth on TOP of that, you have a set up a healthy breathing space needed to function.  It changes your face shape, but more importantly – you can breathe.

I try not to think about what if…

However…

What if someone mentioned that PUPPS was related to celiac disease.  I could have changed my diet, instead of being put on steroids… and the snowball that got me to now.  What if my son had been “clipped” years ago… and nursing hadn’t been such a struggle.  Would that have prevented post pardum depression, and all of the issues that were created from lack of family support during those very trying months?  What would be different now?

My head spins.  Literally.

I cry at how many times I didn’t “get” that my son said, “I can’t control my tongue”.  I mean, I get that it’s a strong muscle… but WHO can’t control it.  Seriously?

We have lots of months of things that were include many trips, most likely surgery for multiple kids, as well as myself, and then therapy for a long while to get these things corrected.  It’s not going to be a quick thing.  We’re going to have to make adjustments to not just throw ourselves into things that eat up our time.  We have to make a solid effort to heal, and be open to changes that need to be made.

Most people would probably cringe at the thought of all of this, but I’m actually VERY excited.  I know this is going to help us tremendously.  We are thankful to God, for the knowledge and advancements being made to understand our body better.  Never assume God doesn’t know what He’s doing.  The one thing I didn’t mention – just how much He has grown me, and strengthened our marriage through this process.  It’s solidified our relationship with our kids, and given them opportunities to trust in Him as well.

God is good.  ALL the time, He is good.

 

“And we know that all things work together for good to them that love God, to them who are the called according to His purpose.”

Romans 8:28

Why I Eat Meat

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Yes.  I’ve read the China Study.

…and then I read the book “WHOLE”

I read “The Body Ecology Diet”…  and I’ve studied the Gerson Therapy and watched the Gerson Miracle, and Beautiful Truth.

I’ve watched Knives Of Forks

 

Well, let me just say that I understand why an organic, vegetarian diet would be done in the short-term – to rid the body of things like cancer, which is caused from inflammation, and focused on healing the body through detoxing.

Why do I say “short-term”?

Because being vegetarian long-term actually increases issues with auto immune disease.  {I’ll get to that in a minute.}

Why the Paleo Diet instead?

Isn’t that just a meat based diet?  Isn’t that TOO much meat?

Actually, no.  It’s neither.

To me, the Paleo Diet is a whole foods diet approach that focuses on high-quality nutrition, while resolving inflammation through proper digestion as well as balancing hormones through proper sleep, stress management and exercise.

It’s not a “diet” to achieve a short-term goal and then stop.  It’s a lifestyle of eating what makes you feel best, and is sustainable over the long-term.

The Paleo diet is not necessarily a “high protein” diet, it’s very much a plant-based diet.  Protein can range from 10%-25% of your daily calories, depending on your individual needs.  Many people only eat fish, shellfish, eggs or white meat, such as chicken or turkey, and skip the red meat.

We eat red meat once a week or more, and our source is grass-fed/grass finished beef – that we all enjoy.

Personally, I feel poorly when I can’t have red meat at least once a week.  I eat chicken or salmon almost everyday.  Because I eat large amounts of fats, I’m able to handle and process more carbs (veggies) as well.  Right now, on auto-immune protocol, I would say my diet is 70% veggies, 5% fruit and 10% meat and 10% fat.  I feel really good – my skin looks really good… and I’m working my way up to organ meats, as I know those are really important as well.

I think for me, I’ve read/heard enough other information from people who have attempted vegetarian longer term, and it caused some major issues with auto immune disease – because their body was missing some key things, it needs to prevent disease.  Dr. Amy Myers is one who shared her story of becoming a vegetarian at age 14, and why she eats Paleo now.

I needed all of the help I could get… it has already been years of my body not absorbing what it needed to thrive!  I’m lean, I feel strong, and I know my body is healing.

What more could I hope for?

If Paleo is a FAD, I’d love to know what one might consider all of the sugar filled, flour laden, industrial seed oil filled foods are that most consume while eating the Standard American Diet??  Seems like a REAL FOOD approach is just what our country needs!

 

“So, whether you eat or drink, or whatever you do,

do all to the glory of God.”

1 Cor. 10:31

 

Adrenal FAIL!

ARIZONA

Oh the ways our body likes to remind us just who is in charge.

I’m back from vacation, and feeling really good over all… but I have to share with you a couple of episodes I had on vacation that were down-right scary.
Before I do that, I’ll hit the highlights:
– I swam a lot, soaked up a lot of sun, had a great time with our kids and got to bed on time every night.
– Despite having to make every meal but one on our trip, the kitchen was HUGE and allowed for the kids to help me without us tripping over each other.  (NOTE: Larger kitchen and full pantry functions much better for 10)
– There was an outdoor table for 10, and the weather was perfect the entire time. (Yes, you may puke, but it was…)
– I’m pretty sure that I was supposed to live somewhere warmer than Kansas, but vacations are good too.

Ok… so that was the highlights.  Here’s the low-down on what else happened.
Our first night in New Mexico, we booked a Homewood Suites room.  It had 3 rooms and a full-sized fridge, which was perfect!  As my daughter and I did our usual OCD clean-routine, we buzzed around the room and my oldest son brought in cartloads of tubs and bags.  I remember making sure the air temp was in the range we were wanting…. 72.  But as we buzzed around, I kept getting hotter and hotter.

I remember things getting a little fuzzy… and when I went out to get another load – something in the hallway smelled…  funky.  Like incents, or something strange.  It was a casino town, and I was concerned about just sending my son off down the hall with no cell phone because he mentioned there were a ton of people in one room “like a party” he said.  So, I was trying to text my husband what was going on…  Only I suddenly couldn’t text, or think… my mind was getting really fuzzy, and I felt like I really needed to lay down before I passed out!  My daughter was getting concerned as I was slurring my speech as well.

I didn’t know what was happening but it was like my energy was zapped and I couldn’t really even care.  It was awful… like an instant flu-paralyzing feeling.

Thankfully, about then, my husband came in with the rest of our kids – and figured out they had the heat on in the rooms, not the AIR… and the blowers were roasting us.  For someone who did hot yoga last year, I was surprised with my body’s reaction to the heat in about a 10 minute time span.  Maybe it was just too much, too fast… I don’t know, but I took note.  After some food, water and COOL AIR, my body came to, and I could help with getting the kids to bed.

A similar thing happened the next night.  When we got to the house we rented, as the evening wore on, we realized the kitchen, (which had many west-facing windows and no window coverings) was roasting – an almost identical event happened… just as the night before, and I began to get concerned for our trip and my well-being.  I was hoping this was NOT a pattern.  We decided for the remainder of our trip that any baking/cooking would be done earlier in the day – and we’d have our lighter meals for dinner – to avoid heating up the kitchen, and making myself sick!

Voila!! No more issues with that the remainder of the trip!

So, if you’re battling adrenal failure, you know what I’m talking about.  It isn’t just physical and emotional stress that gives you the shakes, makes you flu-ish and zaps your energy almost instantly… it can be environmental stress as well, including the temperature.  I did a great job of not “shocking” my body with cold this winter – and always wearing plenty of layers – and I do a pretty good job of just avoiding most stressful people and situations anymore…  but apparently I’m going to really need to watch it with heat and lack of circulating air this summer.  (and continue praying that my body is healed from adrenal failure soon!)

I hope and pray you have SPRING weather where you are!  After a long week back with grey skies, cold temps and rain (which was a blessing, don’t get me wrong) I’m THRILLED that the weekend looks to be gorgeous! 🙂  Enjoy this link to the top 3 reasons Mainstream “Medicine” could be failing you, and what to do about it!

We get to pick up and travel again really soon – thankfully the next trip is only 5-6 hours, vs. two days by vehicle!  I’m planning now what we will eat, and pack… because that is such a key part to making our trips successful and keeping things Healthy for Him!

“This will bring health to your body and nourishment to your bones.”

Proverbs 3:8

 

 

Do You Wanna …

Smoothies.  I make 8 of these a day with various ingredients inside.... to nourish and support our children's gut health.  Time consuming?  Yes.  But...  Believe me, it's been worth it.

Smoothies. I make 8 of these a day with various ingredients inside…. to nourish and support our children’s gut health. Time consuming? Yes. But… Believe me, it’s been worth it.

If you’ve got a female child in the house, then chances are – you know what the next words are going to be…

build a SNOWWWWWWMAN?

Of course, I’m talking about a line from one of the hit songs in the Disney animated “FROZEN”.  After the live version of the song went viral today on Facebook, and I cried… yet again at the words and the emotion.  Especially as the girl turns into an adult, and begs of her sister to “let her in….”

I started of considering WHY. ( I mean other than God created me highly in tune with my emotions – for which I do not consider a weakness, and am thankful for) 🙂

Why does that song and the words and the feeling just really break me down?

Chances are most of us have felt like Anna…. or like Elza at some point in our lives.  Either “shut out” or the one shutting others out because of unexplainable hurt.

I know I have.

More than once, I’m positive.

And it hurts.

I watched an episode of “What Not to Wear” while walking on the treadmill this week, and the person they were transforming reminded me of my daughter.  Words were being thrown around about how the person had “no feeling” or “held no emotional connection to her clothing” …  she just was unable to show her emotions, so they gave her a scale to use to share how she was feeling from 0 to 10.

Now clearly the person HAD emotions, and she had opinions… but according to what the world considers “normal” (and I’d include myself in the category with the world), this girl clearly had a social disorder or perhaps even autism spectrum disorder.  It was pretty obvious.

Honestly, it was painful to watch as a viewer, and I’m guessing it was a pretty awkward situation for the hosts of the show.  I think it took them a bit to pick up that she was actually “like that” – it was part of who she was.

My relationship with my daughter has always boggled my mind.  As most children naturally repeat “I love you” when prompted at a young age, she was 5 before she said it…. and even then I didn’t feel like she really knew what that meant.  She struggles with empathy, emotion and proper social cues.

But sometimes?

I’m jealous that she doesn’t really get emotionally tied in to things (clothing especially, or food for that matter, or situations that shouldn’t require as much thought as I have given it) or that she doesn’t blame herself when someone blows her off…  (because chances are, she doesn’t notice it!)

So part of my tears this week were empathy.

Part of them were JOY.

My daughter is making progress… I feel this recovery process IS working, especially on her brain and in her heart.  I wish I could share with you what a gift it is to have her say, “Hey mom….” and actually have something she wants to share with me, vs blank looks, and no interaction.  She even started writing a “back and forth” journal with me.  This clearly isn’t the same girl in so many aspects.  HUGE hope.  HUGE.

For those of you working on recovering your children with autism – just know, it’s worth it.  I’m seeing leaps and bounds with this one.  I couldn’t be happier.

God doesn’t change who HE is, but aren’t you thankful He can change us?  Boy, am I ever! Healthy for Him

“I the Lord do not change.”
Malachi 3:6a

 

Cleansing Spring Transitions

Here are my new vitamin Bs and Folate to help me and my defect give my body what it needs!

Here are my new vitamin Bs and Folate to help me and my defect give my body what it needs!

It’s right around the corner… just one more day!  Spring makes me think of CLEANING and purging!  I’ve been in an extra great mood to work on this, after the week I had the last week.

Thankfully I was super busy, and wasn’t able to focus on what was going on around me and to me, otherwise I might have jumped off of a cliff.  Ok, not really – but I’m thankful for my friends who lifted me up in prayer.  I really needed it.

We took the kids to visit their doctor last week, and I got a vitamin IV boost.  I was already low on sleep, and per my doctor’s instructions, had started a vitamin C cleanse (with my SIBO elimination diet), and I also began taking my methylated vitamins for my MTHFR issues.  (more on that in a minute)

Well, what happened was a cleanse alright.  I thought I was chelating again, as the following day I spent a lot of time saying, “Oh Lord… please help me… don’t let me die.”

This is when I think MOST people go to the ER.

However, since I’ve dealt with knifing pain in my stomach and bowels for years… sadly, it’s almost normal for me.

Thankfully, it’s LESS normal – as IBS isn’t an issue anymore for weeks on end…

No, this was definitely a detoxify issue.

So, what is up with all of that?  Well, it’s because methylated vitamins are what I need… my liver can process those.  So in the meantime, things get a lot worse – before they get better.

My finger nails broke all off, and I just felt like someone was repeatedly squeezing my stomach and then kicking me in the gut for about 4 days straight.  On day 5, I started to feel much better.  More energy, lots less bloating and constipation…  I have great hope that it’s making big differences, and I am SO grateful.

I'm not sure when my nails have ever looked this bad.  I had worn some Jamberry nails (which I loved) - but following that - the spooning was severe and they just ripped right off!

I’m not sure when my nails have ever looked this bad. I had worn some Jamberry nails (which I loved) – but following that – the spooning was severe and they just ripped right off!

Unfortunately in the middle of my chaos my daughter, and then 2 sons started breaking out from a gluten cross contamination last week.  At first, I was certain it was my daughter’s new orthodontic “bands” that she started wearing – as cornstarch is used to keep them from sticking to one another.  However, then the boys started breaking out a few days later… I knew that wasn’t the only thing we were dealing with.

I knew it had to be something knew – either a formula of a vitamin had changed or perhaps an ingredient I was using had changed….  I knew I wasn’t doing anything specifically different.

Frustrating.

My daughter had a formal date with her father and was broken out from her shoulders to her hands, in the usual DH spots for her.  The boys were both broken out on elbows and hands.  I think it’s been a YEAR since we have had a break out…  I should count my blessings God has allowed us to keep such a good handle on things.

That said, I’m SO grateful that we KNOW when we’ve been cross contaminated… so we can be aware and do something about it.  About 3 days ago we took away their daily vitamins to see if could be one of those.  I must always remember that even the item that are labeled “gluten-free” can still have up to 20 ppm in them – and perhaps some “new batch” was higher than most…  Regardless, my kids are SUPER sensitive, and I am bound to get to the bottom of this!  Gluten dermatitis issues are always difficult because they take 1-2 days to show up after ingesting, and then another 2-3 weeks to go away, even after you remove the cross contamination.  Trying to figure out if they’re worse or better is always fun in the process, especially once they start the itching and scratching.

Another fun tidbit I learned while discussing MTHFR with the kid’s doctor, was the whole midline issues, and things like the “tongue-tied” or “tongue thrusting” issues.

Why did this mean so much to me?  Because our oldest just got braces put on for the 3rd time this year.  He had them off for 6 months before we realized, his whole smile was changing again.  The  orthodonist had him swallow and declared it was his swallowing and strong “tongue thrust” that had moved his teeth out of position, despite a nightly retainer.  As you might imagine I was hoping there was something they could do for this… and the orthodonist recommended “tongue training”.  I had no clue what that meant. (here is an idea, if you want to know)  Thankfully the kid’s doctor had lots of information that would be helpful and explained a lot on how to help my kids who are struggling with various issues.  All of the kids she’s seen so far are tongue tied… some are severely tongue-tied – like my oldest.

Those kids with MTHFR, and midline issues often have the following issues (I think my oldest had ever one): Troubles nursing (many times they will get their tongue “clipped” to untie it, this helps tremendously), or mom will have sore nipples, slow nurser/failure to thrive, motion sickness/troubles sleeping/night waking/mouth breather.  Mouth breathing while sleeping makes it difficult for you to get into that “deepest sleep” mode, and can make you imbalanced with melatonin, and sleep, you also take in less oxygen, so that’s trouble for your immune system.  Those people are often more acidic, so cancer is more likely as well.  When our oldest was little, he never woke up from a nap happy, and ironically, our youngest son is the same way.  They are just always feeling not well rested, and have troubles relaxing to go to sleep because of this disrupted cycle.  Sound familiar?  Hmmm.  I’m the exact same way.

Isn’t it interesting how things like this fit together?  God is such a great designer to make our “system” work together so perfectly.

I always wondered why some of my kids were horrible at swallowing pills…  if only I would have had their tongues clipped early on, and knew to put them on methylated vitamins for the sake of their liver!!

I am happy to announce how much progress my kids with ASD are doing.  My oldest daughter has been saying, “Hey mom… look at this, and check this out” a lot more.  She never used to do that.  She’s even put on earrings to match an outfit ALL BY HERSELF.  Again, details are not generally her thing.   Most of the time she’s been much calmer, and WAY less irrational fits… with a higher level of communication.  Since she was my most severe – it’s been a gift to see her thriving, and knowing these changes are helping her.

Thanks be to God.  Can I just say how good it feels to be making progress, and seeing the fruit of what God has done in my own body, and that of our family?  I’m feeling stronger each day.

How about you?  Working on spring cleaning?  Do you have any great printable check lists?  Fill me in!

“Have I not commanded you?

  Be strong and courageous. 

Do not be frightened, and do not be dismayed,

for the Lord your God is with you wherever you go.”

Joshua 1:9

 

Taking the Plunge!

Gut Issues?  Auto Immune Issues?  You need this book.  Seriously.

Gut Issues? Auto Immune Issues? You need this book. Seriously.

So, for roughly 3 years this spring, something has been upsetting my digestive tract on a daily basis.  It went beyond the celiac bouts and the “IBS” diagnosis (which means, “we don’t really know what’s wrong with you”).

It sounds like most people WITH IBS, actually struggle with SIBO.  From what I’ve learned slow/too fast digestion from undiagnosed celiac often correlates with SIBO.  It’s amazing the things they’re discovering… I’m grateful to be in this movement towards health with REAL foods.

Things have helped tremendously over the past years as I’ve made my way to a gut healing foodie, and helped to transform our family to healing their bodies inside out.  God has been leading me each step of the way.

I’ve made so much progress.  I can’t deny that..  But I also can’t deny that I still have one major issue to address.

I mentioned last time that I was ready to attack that SIBO monster… I’ve been reading and trying to figure this out…
“what is the best plan for me.”  Talking with my doctor… praying.  Most of all, praying.

One of the supplements I was taking – Lauricidin was safe on all account for me – free of fillers, free of allergens.  Except one small problem.  It was derived from coconut.

I can no longer handle coconut, and I was so focused on choosing the supplements that wouldn’t flare my auto immune issues … I sort of missed that fine print.  I know, I’m still human, and thank you for your grace for not reminding me how I should read labels.

Believe me.  I know.

It just wasn’t one I was looking for.

So when my hypothyroid issues started to worsen… hair falling out, nails breaking off… no energy…   I knew it had to be something new I had added…

Which brings me to a grumble session I had last night while my husband and I were shopping.

“Is it bad when you can’t eat 98% of the food in the store?  Because that’s where I am…. and it makes me so sad.”

I’m not talking about the obvious processed junk in the middle of the store.  I’m talking about getting rid of many of the good things you can’t eat, because your gut is so messed up.

“What does that entail?”

Well, one of the major things that I think has been making me NOT heal is starch (sweet potatoes, plantains, or rice), FODMAPSs, and probiotics.  Starch is great for my total digestion, but just really feeds the SIBO.  Normally fermented foods and drinks are great for helping gut dysbiosis, but in the case of SIBO – it only worsens things … Vegetables – how can you go wrong there?  Then starches…  and sugars (glucose for that matter), are one of the ways I feel “good” physically  – helping to keep my blood pressure more stable, and my feelings from POTS lower.

The idea of removing all of that and “getting down to business”…. has left me in quite a funk lately.

All of the things I’m reading and learning are swirling in my mind.

I know the answer.  I KNOW the right answer…

I have to try this.

What’s the hold up?

Yeah Sara.  What is the hold up?

ARGH.

Me.  I’m the problem.

This isn’t that far of a jump from where I am. Right?

I want healing RIGHT?

Right.

So here’s the deal.  Here is what it’s going to take – it’s going to take me committing to several weeks of the following diet (it’s a little more broad, but within my own restrictions, here is what I can eat):

* Carrots, Spinach or  Zucchini if I can tolerate it – only those 3, and they must be well cooked.

* Cinnamon, Salt

* Apple Cider Vinegar

* 4-8 oz of meat at a meal (I have all of the things to make liver pills also – very important)

* Olive Oil

* Bone Broth

and…  that’s it.

I know what you're thinking.  "That looks pretty good."  And it was.  But honestly, how many ways can I fix carrots?  Carrots in broth, mashed carrots with cinnamon, fried carrots, carrot soup...  yep - I'm going to hate carrots soon.

I know what you’re thinking. “That looks pretty good.” And it was. But honestly, how many ways can I fix carrots? Carrots in broth, mashed carrots with cinnamon, fried carrots, carrot soup… yep – I’m going to hate carrots soon.

It could just be a few weeks, it could be a few months.  I need to have 5 days in a row with no bloating/symptoms – and then I can add more foods in – testing each food, one at a time.

Please pray for me.  I’ve been spending more time in prayer about this, and specifically praying over my body and the healing that needs to occur.  Deep breathing, meditation.  I’ve read story after story of people going through rounds and rounds of antibiotics that fail horribly, and living with SIBO for life.  I know this is pretty severe, but it is also instrumental to me quieting my auto immune diseases.

I know God can do BIG things.

He already has.

I’m looking to Him to heal me from this – once and for all.

Pray for my body to handle the ketosis changes, as that is probably one of my biggest concerns.  “Low carbs” and no starch usually doesn’t do well with my POTS symptoms/blood pressure.

I always used to feel like I was getting a low blood sugar, but my blood sugar would be fine…  Feeling like you’re going to pass out every time you stand isn’t ideal.  My goal is no fruit.  That’s pretty drastic, I know – but the point is to stop feeding the monster.  I may baby step into that and cut it back to a banana a day, or something like that, vs. going cold turkey.  I already cut my kombucha back to one a day.

With God, I CAN do this.

Deep breath.

Here I go!

  “Now that you know these things, you will be blessed if you do them.”

John 13:17

 

Eating Organic, The End-All, Be-All Answer

ORGANIC_FRUIT

Right?

Not quite.

I’ve covered why we eat organic.  Do I think everyone should eat organic?  Well, what I know is – it really isn’t possible.  There wouldn’t even be enough food for everyone to eat as many fruits and vegetables as we should be eating.  (Concerning?  Maybe in the heat of an environmental crisis, and believe me – the thought has cross my mind).

What WOULD happen if I couldn’t get the foods we need?  Well, I would get very, very sick.  I would have to try to eat something to survive, but it would be killing my brain in the process, until I could get the food I need.

Many of the people whom I have met online that eat similarly to me, do so, because they’ve heard it will help their symptoms.  Many have already tried medications, for years… and have gotten sicker as a result.  Steroids and the chemo drugs used to treat many auto immune disease do not help matters.

But is FOOD the only answer?

What made me ponder this deeper was an article floating around Facebook last week.  Several of my “nurse friends” and others in “the field” of western medicine had shared it.  Maybe you saw it too. It was an article about vaccinations and how this particular mother grew up on all organic foods, and a ‘clean’ lifestyle… never vaccinated, etc…  but was doing things differently for HER children, and why.   I felt it was a toss in the face of those of us who feel passionately against vaccines, but I chose to read it – with an open mind.

I came away from the article with many more questions, vs. answers.  I shook my head at the ideology of the article that somehow eating organic and “clean” means you will always be healthy, and that apparently you’re a fool.  You can read the article “Growing Up Unvaccinated” here, and then come back and read what I have to say are the flaws of her reasoning.

First of all, her mother raised them on “all organic”.  I’m not sure why, but I’m going to guess her mom had a reason, which is never stated.  Perhaps she had some diseases of her own, and knew SOME of the benefits, but not all.  This type of lifestyle is generally one of less stress and toxins.  If her father was an art teacher and her mother a ballet teacher – I’m picturing some free spirits.  This is only part of the equation.

Secondly – did they eat gluten, or dairy?  The woman claims she was so sick all of the time, yet it doesn’t matter how clean you eat – if you’re still going to consume things that are inflammatory destroyers to your system.  Gluten and dairy are the first offenders, then nuts, nightshades, and any number of food sensitivities.  She says she took so many antibiotics, that she had a resistance to them.  Um…. I’m not sure of many “crunchy” people who I know of who use antibiotics so readily.  They’re gut killers.  Something doesn’t add up.

Thirdly, environmental toxins.  I wonder if she had a work-up from a holistic doctor to figure out why her immune system was so poor.  While this is extremely sad, and cannot be blamed on one thing – again, you can eat as cleanly as possible, and then dye your hair, live by fields filled with pesticides/drink it in your water, etc.  There are so many elements into the health and functioning of your body than can be assumed by organic living.  Eating clean is just ONE element.  Similarly, not just one element change makes you ‘healthy’.

(side note, it does concern me  how people can be freakish about organic lifestyle, and then turn around and do something repeatedly unhealthy which adds to their demise – hair dye alone, beauty products, cleaners, etc…)

Finally, just as she had a the choice to give her children vaccines, I appreciate our choice to NOT risk damaging our children any further.  A shot doesn’t ensure that you’re not going to get sick…. in fact, that’s only part of the fallacy.  For every person out there who claims “autism and auto immune disease isn’t caused by vaccines” – I shake my head.  “It’s just genetic” they say.  Well guess what?   Everything that we have that is genetic, like autism – also has environmental factors that makes things better or worse, turns gene off or on.  Some reactions are immediate, and some reactions continue to be an inflammation that causes disease over a period of time, weeks… months after the shots or exposure.  Diseases are made better or worse with environmental toxins (food, air, water, and things that are put into our blood stream like formaldehyde and fetal tissue from aborted babies, etc)  Again, we have the choice to take that risk, or not.  For that, I am thankful.  Then there is our court system, specifically for vaccination damage, that also says differently.  Every time they have to award money to another person being harmed by vaccines.  Every time you get vaccinated, some of the money you pay, goes into that account that helps those who are damaged.

For us, the decision to not vaccinate anymore isn’t one to try to throw it in the face of anyone else.  It’s our choice, to protect our children, whom we are responsible for, while building their immune systems to fight viruses and disease.  THAT seems like the best choice for us.  I also want to support and encourage others who wish to do the same.  It’s so ironic the fear-mongering that goes on regarding someone doing something differently that benefits them.  Some how it’s viewed as selfish or ignorant.  Personally, I don’t really care – I know God knows our heart on the matter.

We used to be scared of getting sick, because we spent a majority of the time sick.  One cold always meant croup and asthma attacks for our 5-year-old…. followed by sinus infections for everyone.  Ironically, I don’t feel that way any longer.  The viruses she talks about getting – I’m not scared of, and I think it’s silly to be scared.  While we don’t purposefully go out to collect germs, we do purposefully build our immune systems to be prepared to deal with germs.  There is no need to be scared, because when we get sick again – we know it’s actually GOOD for our bodies to fight these things and build immunity.

(There is a reason why they’re injecting viruses into cancer patients… it kills those cells!)  So a healthy, robust immune system is the answer for us!

So while she was a 19-year-old mom making choices after “getting educated”, I’m a 38-year-old mom of 8 seeing the effects of the choices we’ve made and doing things differently after realizing the TRUTH of sick-care and western medicine…  (and still filtering out the fluoride, but the rest of that stuff… come on, really?  Did she believe in unicorns too?)

Just because you don’t follow the ‘system’ doesn’t mean you can’t think.  I’m starting to see the most “educated” people, as some of the least intelligent.  Being “cruel” by not vaccinating?  Quite the opposite.  The stories she describes of being in the doctor’s office, and being sick – was us…. before we drastically changed things.  When the immunologist suggested we just “try that again” (meaning another vaccination) on my son that had a severe reaction with the H1N1 shot….  I knew we were done with western medicine “specialists” and vaccines.

I suppose she’s right, it’s a lot about personal experience.  I don’t believe in “luck” anyway.  To each his own.

We’re living healthy for Him!

“For the evil man has no future; the lamp of the wicked will be put out.”

Proverbs 24:20

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