It’s Getting on My Neuropathy!

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Neuropathy.

I used to think that had something to do with my mind…  like neurological.

Quite the contrary, peripheral neuropathy specifically can be any where with in your body.  It’s very common with MS… it’s something I dealt with for years – totally unknown to me what it even meant!

So what is peripheral neuropathy?

It’s actual damage to nerves OUTSIDE of your brain and spinal cord, and it doesn’t deal with your central nervous system.  It effects:

– Autonomic nerves (“automatic” or “involuntary” nerves – things like blood pressure, sweating, and heart rate)
– Motor nerves (things we are in control of purposefully)
– Sensory nerves (including messages to the brain regarding heat, cold and pain)

What can cause it?  SO many things… it’s endless really.  For instance, with me – I’m going to guess it’s a lack of Vit B… but I’m sure it’s that, and other things.  Physical trauma, repetitive injury, infection, metabolic problems and exposure to toxins and some drugs can all lead to peripheral neuropathy.   See what I mean?  Who really knows…  but doing things like removing toxins, and infection can help to rebalance your body a great deal, but nerve regeneration is the slowest – patience is required!

My biggest issues that I battle on any given day are the following:

Motor issues – weakness in the arms specifically – some days I feel like I can barely lift the lightest thing.  Frustrating when I know I’m “fit” and the muscles are there.

Sensory issues– sharp jabbing/prickling pain, and burning pain, numbness in the hands and feet – making me unable to stand or walk, changes in my hair/and nail bed (despite plenty of biotin and nutrition!), lack of coordination (despite lots of muscle work on that core for years – I’ll often just tip over.  My balance stinks).

Autonomic issues – heat intolerance (read my previous post), digestive problems (and I work at it… CONSTANTLY), dizziness and light-headedness… especially on standing.

Now that I know why my body does what it does – it help me to deal with what I’m experiencing.  I don’t really talk about it… because you get strange looks when you tell someone it feels like bugs are crawling all over your legs, or you suddenly slap your leg because you just got a “zinger” again.

One of the most painful neuropathy issues on the trip was my elbow.  It hurt so much to put my elbow on the arm rest, it wasn’t even funny.  It felt like I had exposed bone, sitting on hot cement – just resting my arm down.  I either kept it to my side, or had to have multiple layers in between my elbow and the arm rest.  This damage led to a familiar numbness in my left hand (pinky and ring finger) – that always occurred after having another baby – for months.  Ever since my last child – it never really went away.

Insane right?  Yes…  I know.

For years I just thought I wasn’t tough – so just sucked it up.  Maybe I needed to work harder on my balance, or just had sore arms because I was weak?

I can’t tell you what peace it was realizing WHY I screamed out when a doctor froze a wart off of my foot… and then told me, “that shouldn’t have hurt.”  (It literally felt like he held a flame and melted my skin off deep into the tissue.)  Was that in my head?  Nope.  Good ol’ neuropathy.

I think it’s about time for me to try the chiropractor after our trip.  I’ve had almost constant neuropathy in my middle back since we have returned.  It’s getting very OLD a week later!!  Maybe some adjusting with loosen up some of those nerves, or relax them at the least.

“When times are good, be joyful; when times are bad, consider this:

God made the one as well as the other, so people won’t seek anything outside of His best.”

Eccles. 7:14

 

Posted on May 5, 2014, in Auto Immune Disease, Celiac/Gluten Sensitivity and tagged , , , , , , , , , , . Bookmark the permalink. 6 Comments.

  1. Reblogged this on sondasmcschatter and commented:
    THIS TOTALLY EXPLAINS IN TERMS WE CAN ALL UNDERSTAND — WHAT SOOOOOO MANY OF US LIVE WITH & DEAL WITH ALSO!!!! THANKS SO MUCH FOR SHARING!!!!!!!! GREAT INFO!!!

  2. Reblogged this on allergictolifemybattle and commented:
    I have had issues with my autonomic nervous system since my exposure to mold.

  3. I love your title; it’s funny. Mine began, along with constant ringing in my ears, after being started on either the seizure or MG medicine. It seems so unfair to take a medicine with the intention of getting better, but you get worse!

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