When I say systemic pain… I bet those of you with it – know exactly what I’m talking about.
People like my husband, who didn’t have pain like that… wondered just what type of pain I was having, and he wanted to understand it better.
“Is it similar to being chilled to the bone?” he asked.
“Not quite…,” I said.
I tried my best to explain, that it’s not always the same… but there are similar issues with it, and certain triggers make it worse – leaving me curled up in fetal position or asleep in bed.
The two I know (for sure) that worsen things – are sunlight and cold. But some days, I wake up thinking… “what in the world did I do or eat yesterday? or the day before?”
USUALLY, the systemic pain precedes a day or evening of inflammation – although the inflammation is in my joints, the pain radiates through my body – into my muscles and bones and brings along a friend – frontal lobe headaches.
I’m certain it’s different for everyone, as we are all designed differently – but for me, it reminds me of the radiating pain you can feel in labor when you’re in transition, only it isn’t focused on your uterus and back only. Similarly, it drains your energy, and makes you feel like you’re going to throw up as the flare worsens. Often times it starts in my upper back and shoulders or behind my eyes… so I feel this sensation in my throat, as if I could throw up because I just hurt everywhere and I can’t function. There really hadn’t been anything “like this” for me before – except labor or perhaps a migraine, but it’s worse than that. In labor, you at least have a relatively slow term goal, and a GRAND prize at the end! Not so much, with auto immune disease… as most are told this must be treated with medicine as it continues to worsen for life…
Because this pain was combined with my fatigue from my hypothyroidism issues, it was difficult to separate what was going on. Add in the chronic gut inflammation – and things have been a tangled mess. No wonder each “specialist” couldn’t figure out what was going on… especially when I’m missing that all important, “biopsy confirmed celiac diagnosis.” (please)
Overall, with the change in my diet and supplements, I’ve not had “as much” of this all at once. However, I recently visited the chiropractor and got adjusted – which might have released some tension, and build up, causing some of the systemic inflammation to be released into my system. I’m on day 4 since my adjustment, and today was a much better day.
So what do I do for the pain? I try to avoid taking anything unless I’m really struggling… and after I’ve tried all of the usual helps. Warmth, quiet, green tea… and then I turn to 2 Aleve. Some days it helps – and some days it can’t touch it. Since my diet change, and added supplements these “bad days”, are MUCH fewer. I no longer feel like “this is my life” forever. Praise God.
I go to the naturopath to review all of my test results from December, and I’m SO excited! I can’t wait to see what more progress we can make. I even signed up for a vitamin IV!
I read some reports on vitamin IVs being a fad in Hollywood, and medical professionals tried to say that they weren’t beneficial, “Unless you had gut issues that didn’t allow your body to absorb vitamins, since they are best absorbed through you gut.” BINGO. With auto immune disease being on the rise – should we really be surprised this is gaining in popularity? Several studies have shown that IV treatment filled with vitamin C has benefited cancer patients GREATLY throughout treatment or for their treatment, depending on the stage of the cancer.
I can’t wait! Oh wait… I already said that. But really… I can’t!!!
Healing your gut might take some time – and obviously I’d never consume gluten or dairy again – but praise God for true healing of my body from the damage that has been done over the years – thanks to celiac disease. Holistic medicine is a huge blessing, and God made our bodies to HEAL.
“And my God shall supply all your needs according to His riches in glory by Christ Jesus… Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God; and the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus.”
Posted on January 23, 2013, in Celiac/Gluten Sensitivity, Our Struggles and tagged auto immune disease, celiac disease, chronic fatigue, fibromyalsia, gluten intolerance, holistic healthcare, hypothyroidism, systemic pain, vitamin IV. Bookmark the permalink. 2 Comments.