What’s the Difference?

What is the difference between gluten intolerance, gluten sensitivity and celiac disease?  I was curious myself, as to how some people could have a gluten sensitivity, but not have the auto immune disease.  I was also wondering how a blood test could show a negative result for having celiac disease… but the symptoms tell otherwise.

I’ve read story after story of people who have had years of testing, and even up to 10 biopsies in 20 years before getting a positive reading on an endoscopy test for celiac disease.  No wonder several doctors have said it’s NOT the golden standard, and in fact – this is why it’s OFTEN missed.

One doctor I talked to said that many medical doctors are missing the boat on following all of the clues that are pointing to gluten sensitivity…  and at this point, it seems a bit insane to me.  It seems it should be one of those first things doctors look at when symptoms point that way because of how simple the solution is, and how serious the complications can be – if you continue eating gluten.

But the truth is, if a pharmaceutical company can’t patent nutrition, or vitamins – {which is the main “cure” to the above listed conditions/disease….}  then you can see why money isn’t being spent on learning more about what all types of gluten does to our bodies, and most specifically = people who are genetically predisposed to celiac disease.

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If a patient is told their blood test is negative, or a biopsy is negative… based on the elimination method of testing, they will continue looking and testing for answers.  When the testing is FLAWED, but the symptoms STILL point to gluten sensitivity or celiac disease – THEN what is a patient to do?

What if the patient doesn’t know to keep pushing the issue?  What if they continue struggling (consuming gluten) and causing irreversible effects to their body?  THEN WHAT?

This video was one of the best I’ve seen, and it has helped me explain to others – what a few doctors, and several expert celiac books have concluded about the disease.  It solidified our decision to rest in our knowledge of our bodies, and NOT REST…  when we weren’t getting answers.

You are your own advocate in this crazy world.

I am the type of mother who doesn’t take my kids in until it’s a must.

We skipped physicals for a few years because I didn’t think my kids were sick.

Had I taken them in – perhaps I would have had a better record that some of them weren’t really growing.  Perhaps some other red flags of celiac disease would have been raised.

I feel like I’ve been to the doctor more in the past 5 months, than probably my whole life…  and I’ve never been so frustrated by lack of answers, and lack of urgency.  But it’s good to keep in mind that  doctors and nurses are people too, and they’re practicing medicine… they’re not able to know everything.

If you feel like something isn’t right, and someone isn’t listening….  it’s OK to SEEK for answers until you get the help you need.  You don’t need to feel like a head case, or an inconvenience to anyone.

“Ask and it will be given to you; seek and you will find; knock and the door will be opened to you.  For everyone who asks receives; the one who seeks finds; and to the one who knocks, the door will be opened.  Which of you, if your son asks for bread, will give him a stone? Or if he asks for a fish, will give him a snake? If you, then, though you are evil, know how to give good gifts to your children, how much more will your Father in heaven give good gifts to those who ask him!  So in everything, do to others what you would have them do to you, for this sums up the Law and the Prophets.”

Matthew 7:7-12

Posted on June 8, 2012, in Celiac/Gluten Sensitivity, Change, Diet, Metabolism, Our Struggles and tagged , , , , , . Bookmark the permalink. Leave a comment.

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