How Important Is a Diagnosis?

H4H_MAGAZINE

I enjoyed a talk with my mother the other day.  We live almost 6 hours from one another, so Facebook and phone calls are the way we keep our relationship tight-knit.  She was talking about her Graph vs. Host disease from her stem cell transplant, and as she was describing to me her struggles, she said, “it’s a connective tissue disorder of some type…”

I empathized with her. As we knew I had some something of that nature, that I’d later relate to all of the auto immune struggles I have.  “Oh, that reminds me,” she said.  “I bet you have EDS.” Ehlers–Danlos syndrome (EDS)

Yes mom,” I said.  “I know I do.”

It’s one of those things.  A name.

I haven’t been “formally diagnosed” – but I have 5 our of the 5 type markers that they look for.  Several of my children do too.  It’s common with POTS, Postural Orthostatic Tachycardia Syndrome, a metabolic disorder that basically means people struggle with all of the things your body is supposed to do automatically.  Often times people pass out, unexplainable as to why – but I can tell you what makes me better or worse.  This is why my blood pressure doesn’t regular when I stand up – and almost pass out, or I can’t tolerate extreme heat, or extreme cold… and it’s probably partly to blame for the struggles my digestive system has.

It’s one of those things I relate to … just like celiac, or MS… but I don’t really talk about.  I’m not about “celiac awareness, or MS awareness, or POTS awareness… or even EDS awareness…”

I prefer to know they’re all inter-connected because my body is a system, but they won’t own me.

So at my appointment yesterday I asked my ND if it was ok to never have a diagnosis for some of these issues.  I mean, I know what we’re dealing with – and know how the AI process works… is that really important, in the case of some medical emergency?  Do my records need to have me labeled?  She reassured me that I am doing all of the right things, and that in the event of a crisis situation, that isn’t going to change what someone might need to do to save my life.

I thought so, but it was nice hearing it.

Then she proceeded to tell me a story about another patient of hers with MS.  The gentleman has been going to their clinic since the early 80s.  When he was told by his good friend and neurologist at KU Med that he had MS.  The neurologist said, we can go through all of the testing, and I can give you the drugs – if you want.  But they won’t make you better….  in fact, they’ll probably make you worse.  You’d be better off to go home and do all of the things your mom told you to do while growing up.  Eat right, exercise, get good rest, and take care of your relationships.”

Simple enough,  right?

But the story didn’t end there.  This was before HIPPA laws were a big deal, and remember, the neurologist and patient were good friends, so the neurologist’s wife called the patients wife, and told her, “You get him down to Riordan Clinic.  You learn what good eating means, and figure out what his body is missing.”

That was almost 30 years ago.

He lives symptoms free today.

I love stories like that…  Because I know they’re the truth.  They give me hope and remind me that I’m on the right path.  While I enjoy being in groups for support of the various auto immune diseases I battle – I really am there to encourage others to dig deeper.  I’ve met some amazing people, and been able to encourage others.  God has helped me build support group to help others learn and encourage one another in this lifestyle that is necessary for me to function.

The name isn’t any diseases… because ultimately that doesn’t make me well.  Addressing what my body needs does.

Healthy for Him.
H4H_IV

“Be not wise in your own eyes; fear the Lord, and turn away from evil.

 It will be healing to your flesh and refreshment to your bones.”
Proverbs 3:7-8

Dysfunction-Junction, What’s Your Malfunction?

Happy New Year!  I just wanted to give you a  quick up date on how things were going with my oldest, and his post frenectomy therapy.  He has made a lot of progress, but I know once we get in there to do expanding, things are going to help even more.

Just to give you an idea of what we’re working on, and why it’s so important for his stress,  I’m sharing some super informative videos.  If you have auto immune disease, adrenal failure, TMJ, jaw pain, grind your teeth, troubles sleeping…  just watch it, it’s pretty amazing.

I’ve been considering why I got my braces on – how much sicker I got.  You see, most orthodontists, even now, are lining teeth up based on aesthetics alone.  They’re looking for a jaw match up -and not considering, “Can this palette house this tongue?  Is this going to cause chronic stress on the patient?  What about chewing?”

So some things to think about are:

* Are you a mouth breather?

* Do you often wake up in the morning with a dry mouth?

* How is your posture?

* If you had braces – how did your adjustment take?

* Did you have molars removed before adding braces?

*Have you had any chronic headaches or jaw pain?

* Did your mother ever tell you that she had troubles nursing you?  (Nipple soreness, poor latch, failure to thrive?)

* Do you get motion sickness or have you had a baby chronically cry in their car seat?

Myofunctional disorders can trigger a lot of issues.  Multiple things may have contributed to them, including taking folic acid while pregnant, (vs. methylated folate), as well as genetics and a grain filled diet.

All of this inflammation does contribute to gut health and your immune system.  It’s pretty crazy… but true.

Now here is why it’s so important.
DANE_SIDE_BEFORE

Do you see what the red arrow is pointing to?  That’s the stress in his neck on a muscle – from straining.  It’s because the muscle (his tongue) is so weak… and the front part of his neck to support his airway.  This is why he sleeps with his mouth open.  If you look at the blue line and arrow – it shows how he holds his head forward to open that airway also, causing a slumped posture.

Now check out his cheesy smile picture (this is part of the file we needed, so no, he doesn’t normally smile this way).
DANE_BEFORE_CHEESE

As you can tell, you can see WAY too much of his gums – because his palette is way too small, his tongue also doesn’t fit into his mouth.  This was before his procedure, but you can tell how tight his top lip was tied.  He couldn’t even shut his mouth!  These teeth – look like this after 3 sets of braces, and 2 permanent retainers in, and him wearing his retainer about 85% of the day, and every night. Disappointing, yes?

Well, I’m hoping once we get the appliance in his mouth and start moving forward later this month, I will have some awesome pictures to share with you on his progress.  I can tell he’s made a lot of headway, but I know this hasn’t been a lot of fun for him.  I’m grateful our functional dentist/orthodontist is working with our youngest of kids so they never get to this point.

It’s been a bit to swallow all of this – financially and emotionally.  Something that could have been addressed when he was a week old, vs. all of the trauma we went through with feeding him, and the specialists we saw, etc.  As a good friend mentioned to me – it has honestly been a post-traumatic stress syndrome for me.  I felt it each time I had another baby and we attempted to establish feeding…  and I literally felt it now.  All of those emotions came RUSHING back, along with a lot of anger to the hurt people caused.

I wanted to scream at the doctors, and the nurses, and all of the people who were so discouraging to me when my son was an infant.  All of the pain I had stuffed inside just came out the night before his procedure, and the day off.  (I should have had you pray for my husband!  He is such a gift to me!)  It was as if I wished they could apologize, or I could get another chance… but I know that is impossible – and nothing would give me back what I have lost, or what he has suffered.

Financially – we’re paying for 3 sets of braces for this kid – now sinus surgery, and getting his lip, tongue and buckle ties released… all of these sessions with the chiropractor at $50 a week.  It all adds up, it’s out of pocket and most of it without insurance coverage.

Thankfully – we are able to make it a priority, and afford it…  but other things have had to take a back burner.  I have several kids with multiple issues we’re trying to address – and then there is me.  It’s been a little difficult to juggle all of this – but God keeps me strong, and positive. He definitely gave me my husband for a reason.

It frustrates me that western medicine and conventional dentists/orthodontists don’t look at the function of people to help heal them.  I’m so grateful to God for this journey though.  I can’t say that enough.

I remember praying and telling God that I would share this with the world – anything I learned – because I knew it was Him who continued to save me during the process of realizing how sick I was.  I don’t usually talk about my struggles anymore, to just anyone – unless I know someone else has similar things that can empathize.  Most people who haven’t experienced that utter shut down of their body, simply can’t (and often don’t want to) understand.

They have a body that regulates temperature, and blood pressure, and digestion.  I do not.  They eat more than 5 foods and don’t have to consider so many food issues for their family.

What I do have, is… I have a heart for people now – and I recognize that I used to push away what I couldn’t empathize with before.  So many people have struggles we can’t see, and I didn’t think that way before.

Thank you God for not pushing me away and helping me to wake up and see the Truth.
It’s the second day of the new year…  and more importantly, it’s a new day!  Praise God for that gift.  What are you going to do to be Healthy for Him this year?

Check out this video on why jaw pain shouldn’t be ignored.

This video explains myfunctional disorders as well.

Pray for our up coming appointment with our current orthodontist.  I’m unsure of what we need to do next.  I’m not sure how much he believes in this process.  I want to give him the benefit of the doubt, as he said himself that 30% of his patients have issues with the result not “staying” and needing a permanent retainer.  That’s a significant number…

“Behold, I am doing a new thing: now it springs forth, do you not perceive it?  I will make a way in the wilderness and rivers in the desert.”
Isaiah 43:19

The Great Detector, Progress and Cancer Truths

This is a thermography camera.  Not scary at all.  Nothing touches you - nothing hurts you, or causes cancer, like mammography.

This is a thermography camera. Not scary at all. Nothing touches you – nothing hurts you, or causes cancer, like mammography.

I’ve made great strides since we last met.  God has been working on my heart, and mind and helping to show me new ways He created to heal myself.

First, myofunctional therapy.  It works.

I’ve learned to keep my mouth closed at night – through the various exercises I’m doing with my children.  At first, I thought it was a fluke… but a week later, I knew it was for real.  I was a believer.  My son has his appointment next month to get his tongue and lip untied as well, and after the first of the year – we’ll be looking at being expanded and braces… together.  I think our orthodontist finally gets that this isn’t about looks – as much as it is oxygenating our bodies, and restoring our health – for now and the future.

Check out how much MORE air is moved through your nasal cavity at night, while your mouth is closed.  God has a purpose in warming and filtering that air also.

Check out how much MORE air is moved through your nasal cavity at night, while your mouth is closed. God has a purpose in warming and filtering that air also.

Secondly, I talked to my ND about LND (Low dose Naltrexone – compounded), and Alpha Lipoic Acid.  They work together to help keep the stress I can’t control from taking over my health.  This couldn’t have happened at a better time.  I had been considering it for a long while – as the results with helping those with MS were pretty significant.  Within the first week, I noticed the back spasms I’ve had for years – were gone.  I’m about 3 weeks into it now – and they are still gone.  Praise be to God.  I’m on a low dose now – and I’m thankful that is working.  It’s a good sign – because as we all know, we simply can’t control all of the junk going on around us, and that really tanks my adrenals and my immune system.

Thirdly, after watching most of the Truth About Cancer series, I started taking Fulvic acid.  There is plenty of info out there, but here is a small bit of the benefits.  The doctor who shared about it said in all of this 8000 patients, he had never had a negative reaction to it.  That gave me a bit of hope – as I seem to react to everything.  So far, so good!  The doctor said he didn’t want it sound like a ‘Magic Bullet” or too good to be true – but I’ll admit – I’ve noticed a boost in energy, and my kids have seemed more level on it.  Not only does it gives your body essential vitamins, minerals and amino acids, it binds to toxins, and works as a chelator to metals and other things you don’t want inside of you.  The other cool thing is, it could have only been created in nature by something “like the flood”. :) God knew we were going to mess things up, and He allows us a way to restore!  Praise be to Him.

Lastly, I had my thermography appointment in the midst of “breast cancer” awareness month.  I’ve noticed some changes in my left breast, and because I’ve had fibroids in the past – I just thought it would be smart to check up on things, for my future health.

The test was relatively simple, with the most difficult part being sticking my hands in ice cold water as a “challenge” to see if the spots in question still show up as being “fed”.  I was to get my results within a few weeks, and if everything was normal, I wouldn’t need to speak to the doctor.  I set my “phone appointment” – with the intent to cancel if all was well.

The weeks came and went… and I didn’t hear from my doctor.

I knew something had to have been in question – and deep down, I think I knew something was there all along.

Last week my ND confirmed my thoughts…  My fibroid showed up on the right side, and on the left side, near my other fibroid, there is an area in question, being fed vascularly.

She requested I get a sonogram, and I can’t remember much else she said after that…

I had some questions… we talked about my past issues on that side…

I always struggled with mastitis due to dense breast tissue, scar tissue and being lumpy.  Before my test, I thought maybe I was dealing with non-lactating mastitis…  that maybe some underlying infection in my breast was causing issues.

As I talked through things with my ND I became acutely aware of how I got to where I was.

My lack of regular cycle stemmed from not absorbing the right nutrients in my early teens and loading my liver with estrogen from the fake hormone therapy (BCP) at high levels.

The BCP never solved things with my irregular cycles and contributed  to the massive, fast growing tumors I had from ages 15 to when I went off at age 23 when married.
Having those 3 breast surgeries, to remove fibroids, led to scar tissue and combined with the lumps and poor diet, led to chronic mastitis.
That chronic inflammation and antibiotic cycle continued to break down my gut, thyroid and immune system.

Thyroid dysfunction is essential for cancer to grow.

So my chiropractor happened to ask me “when” I would get off of the Estro-DIM I was on.  I didn’t have an answer…  I assumed I would be on it … indefinitely.  He said, “but when your liver is functioning well, you should be able to get that out of your body.  You should be able to go off of it”

The wheels were turning, but I still wasn’t getting it.

So basically this estrogen, that continues to cycle and ramp up in my body is causing cancer to be fed in my left breast, and as my ND said, “We need to get that estrogen – OUT!”

So…  I set my appointment for a sonogram this week to see exactly what we’re looking at… and we’ll go from there.

My chiropractor suggested another saliva hormone (cortisol test) to see where my estrogen levels are.  If they’re still sky-high – perhaps an estrogen inhibitor for a time while I’m detoxing – could help me get over the hump.  Clearly my body hasn’t done it on its own yet.  I appreciate health-care providers who help weigh your options, and really do “get” natural healing.

I am not scared, I am thankful for the gift of this information, and the opportunity to help my body be well.

I know I’m in better shape than most.  Tackling a new diet doesn’t need to happen… but increased detoxing does.  Staying the course with de-stressing, exercise and sleep.  (Ok, so I still need more sleep!)

I’ve increased my juice in-take, been working on resolving negative emotions from relationships that destroy, and purposefully avoiding those who are toxic to my health. (Yes that’s number one when disease appears – negative emotions and stress destroy your immune system).

I know we all deal with things differently.  What works for some, doesn’t work for others…  I’ve learned over the course of the past three years, it’s easier for me to just not talk about things openly until I have a plan.    “Checking in” with people stresses me out.  I knew writing this all out would help me.  My mom and husband and kids know – and kids said this.  “I’m not a afraid mom, because I know that God will show you what to do.” 

They are right.

Not only that?  But a thermography shows more than a mammogram would have … maybe for years.  So I must assume I’m ahead of where I might be otherwise.

Until next time!

If you missed the Auto Immune Summit, or the Truth About Cancer series – please take the time to check them out.  SO much great information out there for us to help ourselves.  God is good.

And He said to him,

“Rise and go your way; your faith has made you well.”

(Luke 17:19)

Overloaded Sinuses

photo_BEETJUICE

I’ve been a terrible blogger lately. It’s really not you, it’s me.  As much as I cut out of my life to prepare for this crazy busy soccer season and preparation to build a new home, blogging just had to take a back seat.

I wanted to update you all on my first round of Fluconazole, how my son’s sinus surgery went, as well as how our Myofunctional Therapy is going along!  It’s been a busy end of summer at our house!

First off, the Fluconazole did help.  Not enough for me to eat raw veggies… but enough to notice a change in distention after eating.  MUCH improved.  We’re talking about round two starting soon, but I definitely want to try it again.  I’ve been more consistent daily with my juices to start my day, and keeping my meat portions in check.  More recently I’ve gone back to keeping all raw fiber out of gut, so only cooked veggies, avocado (1 a day total) and well cooked meats – mainly salmon, chicken, and turkey – with some red meat (Grass fed and finished beef).  I’ve also been studying some on parasites, and cleanses with that.  I ordered SA Wilson’s coffee for this.

My son’s surgery went fabulous, as did this healing period.  The only issues we had were with recovery in the surgical center.  The medical reports (yes, we got them!)  said that the surgery went well and he woke up and went to recovery.   We ended up waiting almost an hour following surgery, to get to see him.  He had to be put on oxygen for about 4 hours because the nurses had drugged him with Demerol, an old drug they used to use in the 70s.  Not cool.  Especially considering we talked in length with the anesthesiologist about his adrenal issues, inability to methylate narcotics, etc.  She totally understood.  She actually came in following surgery and said… “mom was riiiiight.”  So we’re fairly certain it wasn’t her that gave the orders for that.  Meanwhile, we he also had an allergic reaction to one of the other medicines they gave him…  Still we have yet to get the paperwork on this situation to figure out what we need to be aware of.  THAT has been frustrating and is just one of my many beefs with the whole western medicine bullying that can occur.  Clearly you have a right to the records and information – you are the patient.  Especially on an allergic reaction, you need those records to be informed for your health future.

Our family Skype classes start Wednesday with our therapist.  I’m excited.  We got our kits with all of the toys for class, we took all of the “before” essential pictures, and we got our binkis to start doing our muscle therapy during “zone out time” at home.  Our orthodontist still doesn’t seem quite sure what to think… but as the therapist said, some people you just have to “show” for them to get it.  (One of the suggested books is: Close Your Mouth)

I’ve managed to have a sinus attack with our weed pollen counts through the roof in Kansas, followed by some type of virus that went through our family.  Pertussis has been pretty thick throughout the county, so it could very well be that…  you know us though, definitely NOT afraid of the promoted and highly exaggerated “big, bad wolf.”  The kids keep asking when they are going to start coughing.  We’re wondering if with supplements and our diets – if this just won’t be an issue.  The mucous is super thick – but with high levels of Vitamin C, increased probiotics, vitamin D and fish oil – we seem to be faring well.

Some info on treating whooping cough naturally for a 30 year immunity, vs a 3 year (maybe) with the vaccine.

Anyway, for us, so far, so good.

That’s about it for me.  Our trip did do me in, as traveling and all of that jazz always does.  I’ve struggled to get back on track with juicing and having issues with “C” that leave me throwing up because I’m so full.  I really hate that part…

This time when I left, I found myself missing “home” and family even more.  There is something about being with people who just get you, who are a support system,  they encourage and love you.  When I said good-bye to my mother she held on long and cried deep.  I wondered in my heart what it must feel like to know you’d never just “hang out” with your daughter again… how afternoons together, grabbing a movie or a meal wouldn’t be possible because they simply lived too far away.

Not just for a season, but forever.

My acupuncture read out said that I was struggling with stress, and “a broken heart.”  Couldn’t have been more spot on.

Thanks be to God for the burdens and heartache He carries when we can’t.

 “The Lord is close to the brokehearted and saves those who are crushed in spirit.”
Psalm 34:18

 

Busy! Busy! Dreadfully Busy!

SIBO

I think we’ve worn a path to our doctors offices almost 3 hours away from our home, but I’m delighted to report, I believe we’re making some progress.

On my own health front, I have been struggling a bit with some type of hormonal imbalance that I’m guessing is affecting my thyroid.  I made some poor choices about a month ago, and yes… I’m still paying for them.  They were sweet potato chips with coconut oil…. and coconut oil doesn’t like me.  A little bit one day, and little bit more another day… and the next thing you know – I was eating way too many chips that I shouldn’t have been having in the first place and ending up in a lot of pain.

My reactions to coconut oil aren’t as bad as coconut flour… so I lied to myself and thought I could handle it.  But, as with any food that causes AI reactions…  it catches up with you, and it’s never worth it.  By God’s grace, we weren’t able to get the chips for several weeks (and I believe they are still out of stock), so that helped me get back on the right path.

It seems insane though, doesn’t it?  Something like “just” sweet potatoes and coconut oil with sea salt, (other wise safe and healthy ingredients) can affect my gut, throw off my hormones and cause countless breakouts and neuropathy in my back (so irritating) legs, feet and arms.

Because of all of that I gained (almost overnight) about 5 pounds – that I can’t seem to shake either.  This is why I believe thyroid problems are to blame for so many issues that women struggle with concerning weight.  They can cut calories and increase exercise – and still continue to struggle.  But if their thyroid is off = due to a leaky gut,  high cortisol (stress) levels,  poor sleep (inability to stay asleep due to airway obstruction or other hormone issues) – all parts play a role.  Most often, people take sleep meds for something that doesn’t really help balance anything or get to the root cause of the issues for long-term health.

So with that, I’m back on track…  and not planning any less-than-intelligent moves in the near future.

On top of that, after a recent visit to my naturopath, we opted to try Fluconazole to help nip my SIBO in the bud for good.  It was a 10 day dosing schedule, and we might have to do more – but after being on AIP for over a year, and trying every natural help I can… I figured this was worth a shot.  The down sides to the treatment (other than what is in the pill, including RED food coloring – WHY?) was a chronic headache that I had all waking hours.  I imagine some of that is from detoxing whatever bacteria was dying…  but by day 6 I did feel like my bloating was improved.

Now I’m about a week out of my last dose, I can’t say it’s cured that bacteria 100%, but I’m improved dramatically, and with less pain after eating.  Our goal is for me to be able to eat raw vegetables again.  It’s the little things in life. :)  We’ll probably try another dose next month.  I’ll keep you posted.

So, combine all of that with a bit of added stress recently with taking on a new house project, with a heavier workload as we gear up for busy time in retail and prep for school, which equals less sleep, and my son having sinus surgery (more on that later), I know my cortisol levels, rest and exercises aren’t where they need to be.  It all matters.

On that note, I better run.  I have a trip to pack for, a follow-up appointment, an ad to create, 2 sessions to work through and I need to magically make a 6 year old’s birthday party happen before we leave in 3 days.

I will be walking, focusing on breathing and saying NO more often.

Healthy for Him.

 

“But we have this treasure in jars of clay,

to show that the sur

passing power belongs to God and not to us.”
2 Corinth. 4:7

How Do You Eat an Elephant?

photo1

If there is one thing that I’ve learned about my health over they years, it’s that restoring your health isn’t an over night process.  There is no magic pill that will fix it, no “one-size-fits-all” answer…

That said, there are common threads in healing, and it starts at getting to the source of a problem.  While reading “The Paleo Approach” book, she talks about how getting your auto immune symptoms in remission, or under control, really depends on your compliance to your route.

I’ve read lots of things that talk about healing MS or other autoimmune diseases, only to NOT talk about an auto immune protocol diet.

Going gluten isn’t mentioned… or being grain-free, or dairy-free… or refined sugar-free… and those are the top 3 things that have to be completely eliminated.  Slowly but surely… we’ll get there.  (But how many people suffer in the process?)

I recently read a commentary on the Paleo Mom Community Facebook page, where someone said the Mayo Clinic actually advised this person to go “Paleo” for autoimmune disease.  “They are big believers of the Paleo diet and advised me to change my lifestyle.”

That surprised me.

I mean, I know it’s true – but you know things are changing if Mayo is starting to pay attention.

While I don’t necessarily like the word “Paleo” – It works – it’s the easiest way to explain to people what it’s like to eat REAL FOOD and to focus on a nutrient dense diet and it’s recognizable by many people…

I think when Paleo doesn’t “work” – there are more food sensitivity issues that need to be addressed.

Sometimes there are also other things that need to be looked at as well… that aren’t diet related.  Sometimes they’re toxins, sometimes they’re structural, and it’s crucial – and you have no clue.

I mentioned a few months ago about my oldest son “tongue thrusting” and being a mouth breather, and the issues that has caused over the years.  I’m sure maybe you thought, how much does that really matter?  (Read this and find out!)  Honestly, I had no clue either.  Our entire family finally met with our Orofacial Therapist to discuss what we need to look at for the kids and myself, and we also had an appointment for our oldest son, who takes first priority with this whole issue.

After much discussion, and evaluation of 5 of the kids, it was determined most have the same issues – deep tongue tie, many had lip and buckle ties, and some type of breathing restriction as well.

She shared about her own kids, and her and her husband’s struggles … and I heard a lot of the similar issues we’re battling.  I’ve read enough to know if you have a poor sleeper,  or a child with speech issues, a child with ADHD personality traits, a slow grower, a poor immune system…  on and on – it’s worth looking into.  THIS could be a missing link to helping to restore your child’s (or your own) health.  Read more about Orofacial Myological Disorders here.

My son has adapted well… I will admit that… but it’s also a huge burden lifted to hear someone who “gets it”… that this needs addressed, and why.  It also gives me great hope that we can DO something for him, so he and the others don’t end up in the position I’m in health-wise.

So we went from the Therapist, to the ENT, and weren’t there very long before we knew surgery was going to be D1’s best option.  He needs a Septoplasty surgery to fix his deviated septum, and they will be removing his adenoids as well.  Oh boy.

So… here’s the long-term goals for revising his tongue thrust and restoring his health:

1. We get him a hole to breathe out of to stop the airway obstruction: Septoplasty, and allow him to heal from surgery (About a month).
2. We do a laser procedure to release his tongue and lip tie, and start therapy which will include regular therapy with deep tissue massage to release a lot of the issues that are currently embedded into his cranium (Functional Cranial Release), neck and shoulders.
3. We look back into expanding his palette, and braces.

Now because this hits home for myself so much…  You know I’m excited to get started on myself as well… I hold all sorts of incredible stress in my neck, and see a chiropractor regularly for adjustments to help me with pinched nerves and my son is the same way.  I’ve always struggled with my posture…  I didn’t know why.  I get a little giddy for HIM just knowing how much better he will begin to feel when this is all said and done!

So how will we eat this elephant?
One. Bite. At. A. Time.

D1’s biggest delight is that his surgery will be in the next 30 days, so he will be able to place high school soccer at a new level this year.  I can only imagine how much faster he will run when he can BREATHE!  Praise be to God for this journey and His leading!

For more reading on this topic.  My Orofacial Therapist recommended the new book:
The Cause and Cure of Malocclusion, by John Mew.

“My son, if you accept my words
and store up my commands within you,
turning your ear to wisdom
and applying your heart to understanding—
indeed, if you call out for insight
and cry aloud for understanding,
and if you look for it as for silver
and search for it as for hidden treasure,

then you will understand the fear of the Lord
and find the knowledge of God.
For the Lord gives wisdom;
from his mouth come knowledge and understanding.
He holds success in store for the upright,
he is a shield to those whose walk is blameless…”

Proverbs 2:1-7

Responsibility. What’s in a Word?

Just one of my green juice choices this week.  Cucumber, Lemon, Celery, Cilantro, and Spinach!

Just one of my green juice choices this week. Cucumber, Lemon, Celery, Cilantro, and Spinach!

I celebrated my 39th birthday last week.  Well… sort of.

My kids forgot, my husband wasn’t far behind that… and well… it was just another day of baking, laundry and my chores.

The day after, my daughter asked, “Is this day better than your birthday?”

“Yes,” I replied.

“That’s NOT good,” she touted.

I simply told her that my joy isn’t all set on one day like it used to be.

Expectations… disappointments, letdowns.

No thanks.

I choose the grateful road… and I’m much happier that way.

I was much happier on my birthday when I got a nap too.

All in all,  I’ve noticed that certain people with disease choose a path of victim, and others choose a path of active determination.

I’m not sure why that is.  Is it our nation?  Is it something promoted to us from an early age?

We can either say, “THIS happened to me…” or blame something on our genes, with our options of lifetime drugs, and not accountability…

OR

We can say, I’m going to dig deeper!  I’m going to find out just why and how God made me the way I am…. and where I went wrong, and what I can do.

To me, it’s  called responsibility.

It’s MY responsibility to take care of my body.  To feed it what it needs. To find out why it’s not absorbing something specific and do what I can.  To realize what I’m choosing to expose myself to, and avoid those things that aren’t helping me be well.

There is going to be plenty that isn’t in my control… and for the small portion that God gives to me to accountable for… I’m going to work with Him to learn, grow and realize there are many things I CAN do to help myself.

There are reasons disease happens.  Multiples reasons.  Diet, exercise, toxicity, stress, sleep…. genetics are often a small fraction of the equation, and even then – we can work with what we have to do the best for the body we’ve been blessed with.

Healthy for Him!

“He is the radiance of the glory of God and the exact imprint of His nature, and He upholds the universe by the word of His power.

After making purification for sins, He sat down at the right hand of the Majesty on high.”

Hebrews 1:3

 

When Food Doesn’t Move

BEET_JUICE

Good news!
My comprehensive stool test came back!

I don’t have bad bacteria in my gut anymore.

No candida.  No more SIBO.

Unfortunately, I don’t have any GOOD bacteria either…and I had meat (undigested in my stool).

Gross.  I know.  But it’s my reality.

So how does THAT happen?

Well, in my process of preparing for the test – I had to stop taking my enzymes, any probiotics, and HCl (the stomach acid helper).  In the mean time, we went on vacation… I stopped taking my MSM… I got a little lazy and was eating some sweet potato chips, with coconut oil, which I”m not supposed to have because it causes reactions… and I started eating some raw veggies… carrots, cucumbers… a few radishes.

BIG Mistake.  BIG.  HUGE.

As of recent I had been battling the every day morning “I think I’m going to throw up I’m so full in guts” feeling.  I got a stomach bug early this week – which emptied my entire body of any food contents that might have thought about sitting, and other than wishing I didn’t have to throw up beet juice, I was just THANKFUL to not feel so sore, and sick.

It was almost a year ago I realized I was battling gastroparesis, you can read more about that if you want.

I knew my stomach was emptying slowly.  I didn’t really consider THAT was my main problem.  I knew it led to other bacteria issues… I figure THAT had to be the main problem…  and maybe it was – before the treatments I did.

But now?  After getting the results back from my stool test… and knowing the SIBO is gone, and candida isn’t an issue… and there are no parasites…

and some more research on gastroparesis….

I realize now – this is more serious, and I need to get more specific before I end up on a complete liquid diet.

I’m happy to report I’m bouncing back from my Iowa trip, and adding MSM in has helped my inflammation a ton (as has getting rid of the sweet potato chips – boo-hoo!)

I spent some time being real with myself, and figuring out a plan because this is serious, and it’s not going away.

I have to say I’m SO glad I did the most recent elimination diet from this book.  It helped me get to this point to see why and what was making me bloat.  While I focused on trying to eat 2 meals a day, and a smooth in the AM (more recently) – in an attempt to encourage “cleansing waves” for my digestion process…  I’m realizing now that approach isn’t going to fix my gastroparesis.

In fact, it’s going to make it worse.  While the well cooked foods, and types of foods are GREAT to encouraging healing…  SMALLER, more frequent meals are required.

I’ll admit.  I had some tears over it.

Realizing that fiber from raw vegetables and fruit simply aren’t an option, and that juicing and well cooked smaller meals like I ate before, are going to be consuming most of my summer wasn’t exactly where I was hoping to go with this.

Selfishly I was thinking we’d be on track to targeting a bacteria, and be able to move forward… away from the chronic pain that has plagued me for a majority of the past 3 years.

You know how when you are in a pit… and God just lifts you up?  

Once again, God doesn’t disappoint.

While researching my newest plan, and awaiting my doctor’s input…  I was SO encouraged by this short video by an 18-year-old from Canada who shared how SHE healed her gastroparesis… after going through a wild goose chase with western medicine.  She talks about several things that I’ m already doing, and a few I’m interested in trying, or getting more serious about.  Specifically acupuncture more regularly.  I’m going on Tuesday.

I also watch this video on what to eat for gastroparesis, and she had her top 10 things to do… again, most of them I’m doing, but it had some great insight.  One of the things I KNOW effects me (and literally made me laugh out loud!)  is  “eat in a calm environment.”  Sorry.  That’s not going to happen any time in the near future anyway, and I know stress is a big problem – I’m fighting regularly to keep under control, and at a manageable level.

Thanks so much for taking the time to read this.   Please don’t pity me.  I am encouraged and hopeful.  Our BIG GOD is a healer – and I’m focused on what He’s doing in me through this process.  Healthy for Him.

Curing the Incurable

What is in Iberogast?

“Then they cried out to the Lord in their trouble,
And He saved them out of their distresses.
He sent His word and healed them,
And delivered them from their destructions.”

Psalm 107:19-20

 

Just Breathe

D1_LIP_TIE

We might take for granted that we breathe.  It’s something we don’t think about often, until our passage ways, by which we take in oxygen, are blocked.  Either we’re stuffed up, or swollen up, or something toxic in the air prevents us from breathing…

How much thought have you given to breathing while you sleep?

Do you snore?

Are you a mouth breather?

Do you “smack” when you eat?

Messy eater?

Drooler?

Have trouble swallowing?

I remember my snoring and lack of ability to breathe being SO bad during pregnancy, my husband asked the doctor if I could “die” – because it sounded like I was gasping for air.  Yes – it was really horrible.

We had our first official “meeting” via Skype with our Oral-facial Therapist this week.  The woman who has insight into helping my 14-year-old be able to close his mouth, retrain his tongue, and avoid yet another round of braces.  Time is of the essence.

Something I didn’t realize until a few days ago, D1 has a lip tie, in addition to his tongue tie.  That’s partly why he can’t close his mouth.  His top lip is “tied” to the skin of his face inside his mouth, not allowing him to pull that lip OVER his teeth, and close his mouth.

His lips are always cracking and dry.  He is a horrible mouth breather.  It often leads to bad breath.

All of that seems pretty minor, comparatively to the quality of sleep he has been missing over the years.

Sleep is essential to your body healing.  Its’ when you repair and recover…. and grow.  There is growth hormone only created when you sleep.

So while getting your inflammation down, and eating a real food diet is helpful, as is increasing your zinc, and getting enough vitamin D…

If you’re not getting the proper oxygen throughout the day, and you’re not getting the oxygen flow at night.

Guess what?

Not cool.

So we discussed all of that… and next week we’re setting up an appointment with an ENT to take a look at D1, so we can address these issues with him first.  I’m fairly positive he isn’t the only one who will be addressed – but the palate expander on several of the other children HAS helped address things dramatically.  She said when you’re talking about even tiny millimeters of space “cleared” to allow oxygen flow, you’re talking huge differences.

While we talked, she shared part of her story.  Very similar on some levels to mine.  Metal toxicity, and healing her body inside out.  She encouraged me to look into expanders myself.  I told her my orthodontist seemed to shy away from that, at my age…  she disagreed, and said it was the best thing she has done, although they used removable devices, so you can eat – it has made HUGE impacts on her sleep and healing.

I can imagine…. just how much that is impairing my healing process.  I do sleep – but I never feel rested.  I just don’t.

She explain how braces used to be addressed, vs. how they are now…  The teeth on top were “aligned” and the bottom jaw was “tucked” under.  (If you can visualize my profile… Beeker from the muppets comes to mind!)  She went on further to say that once you set that bottom foundation – then you set the top teeth on TOP of that, you have a set up a healthy breathing space needed to function.  It changes your face shape, but more importantly – you can breathe.

I try not to think about what if…

However…

What if someone mentioned that PUPPS was related to celiac disease.  I could have changed my diet, instead of being put on steroids… and the snowball that got me to now.  What if my son had been “clipped” years ago… and nursing hadn’t been such a struggle.  Would that have prevented post pardum depression, and all of the issues that were created from lack of family support during those very trying months?  What would be different now?

My head spins.  Literally.

I cry at how many times I didn’t “get” that my son said, “I can’t control my tongue”.  I mean, I get that it’s a strong muscle… but WHO can’t control it.  Seriously?

We have lots of months of things that were include many trips, most likely surgery for multiple kids, as well as myself, and then therapy for a long while to get these things corrected.  It’s not going to be a quick thing.  We’re going to have to make adjustments to not just throw ourselves into things that eat up our time.  We have to make a solid effort to heal, and be open to changes that need to be made.

Most people would probably cringe at the thought of all of this, but I’m actually VERY excited.  I know this is going to help us tremendously.  We are thankful to God, for the knowledge and advancements being made to understand our body better.  Never assume God doesn’t know what He’s doing.  The one thing I didn’t mention – just how much He has grown me, and strengthened our marriage through this process.  It’s solidified our relationship with our kids, and given them opportunities to trust in Him as well.

God is good.  ALL the time, He is good.

 

“And we know that all things work together for good to them that love God, to them who are the called according to His purpose.”

Romans 8:28

Why I Eat Meat

photo1

Yes.  I’ve read the China Study.

…and then I read the book “WHOLE”

I read “The Body Ecology Diet”…  and I’ve studied the Gerson Therapy and watched the Gerson Miracle, and Beautiful Truth.

I’ve watched Knives Of Forks

 

Well, let me just say that I understand why an organic, vegetarian diet would be done in the short-term – to rid the body of things like cancer, which is caused from inflammation, and focused on healing the body through detoxing.

Why do I say “short-term”?

Because being vegetarian long-term actually increases issues with auto immune disease.  {I’ll get to that in a minute.}

Why the Paleo Diet instead?

Isn’t that just a meat based diet?  Isn’t that TOO much meat?

Actually, no.  It’s neither.

To me, the Paleo Diet is a whole foods diet approach that focuses on high-quality nutrition, while resolving inflammation through proper digestion as well as balancing hormones through proper sleep, stress management and exercise.

It’s not a “diet” to achieve a short-term goal and then stop.  It’s a lifestyle of eating what makes you feel best, and is sustainable over the long-term.

The Paleo diet is not necessarily a “high protein” diet, it’s very much a plant-based diet.  Protein can range from 10%-25% of your daily calories, depending on your individual needs.  Many people only eat fish, shellfish, eggs or white meat, such as chicken or turkey, and skip the red meat.

We eat red meat once a week or more, and our source is grass-fed/grass finished beef – that we all enjoy.

Personally, I feel poorly when I can’t have red meat at least once a week.  I eat chicken or salmon almost everyday.  Because I eat large amounts of fats, I’m able to handle and process more carbs (veggies) as well.  Right now, on auto-immune protocol, I would say my diet is 70% veggies, 5% fruit and 10% meat and 10% fat.  I feel really good – my skin looks really good… and I’m working my way up to organ meats, as I know those are really important as well.

I think for me, I’ve read/heard enough other information from people who have attempted vegetarian longer term, and it caused some major issues with auto immune disease – because their body was missing some key things, it needs to prevent disease.  Dr. Amy Myers is one who shared her story of becoming a vegetarian at age 14, and why she eats Paleo now.

I needed all of the help I could get… it has already been years of my body not absorbing what it needed to thrive!  I’m lean, I feel strong, and I know my body is healing.

What more could I hope for?

If Paleo is a FAD, I’d love to know what one might consider all of the sugar filled, flour laden, industrial seed oil filled foods are that most consume while eating the Standard American Diet??  Seems like a REAL FOOD approach is just what our country needs!

 

“So, whether you eat or drink, or whatever you do,

do all to the glory of God.”

1 Cor. 10:31

 

Follow

Get every new post delivered to your Inbox.

Join 153 other followers

%d bloggers like this: